Feel when your seizures are coming on.

Re: Feel when your seizures are coming on.

Submitted by Erika G on Sat, 2013-07-06 - 13:41

Hi, Im 24 years old and I had seizures for a few years but never new what they were. So I did feel when they were coming on and After I told my parents what I was feeling, I began to see a Neurologist... i was on a couple of meds but None did good. So I would feel a wierd feeling in my gut and a little like nauseous. Turned out I had temporal lobe seizures and after tests, it was concluded to be right temporal lobe seizures... The option of brain surjery came up and I went with it. My surjery took place 3 weeks ago, im on my way to recovery now. It is a very slow process, can be overwhelming, very emotional and you need to be patient. The thing that mostly bothers me until now is vision part. I cant see on the upper left side from the corner of my eyes. Imsure they make you look at their nose and ask you how many fingers they are holding on the sides. Im still a little unbalanced and my eyes just feel a little dizzy when I look ahead. Its uncomfortable but its getting better. After the surjery, i was halucinating, but it was normal, that basically went away... I dont regret having surjery, it is just hard to be patient with the recovery... If you want to know more just ask... You are young, I regret not having had, had this treated earlier

Re: Feel when your seizures are coming on.

Submitted by SteveF on Tue, 2013-07-16 - 10:27

Yes I do. I feel weak, dazed, nausea, and feel like I am just going to pass out. I have a generalized seizure disorder and I mostly have gran mal or tonic-clonic seizures. I always remember feeling the seizure coming on, but never remember what happened with the seizure.   

This has been happening all my life and the doctors never diagnosed me as having a generalized seizure disorder until I was admitted to the hospital with atrial fibulation that was triggered by the gran mal seizure. This happened to me at 40.

Re: Feel when your seizures are coming on.

Submitted by just_joe on Tue, 2013-07-16 - 12:41

yes.  I generally have an aura which is a seizure in itself. However I also have complex partial seizures. I used to call them focal motor seizures. Those started with my right hand not doing what I wanted and it raising up. Once it reached shoulder lever I went into a convulsion which started on my right side but would end up in a full convulsion. They looked like grand mal seizures but were different due to the fact I was concious and could see,hear and understand what was happening I just couldn't control what was happening.  I knew that if my arm got shoulder high I was down and I tried to control the rise of my hand and in some cases I was able to do that.