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Feel when your seizures are coming on.

Mon, 06/24/2013 - 16:27
I am 18 years old and some times I can feel when a seizure is coming on. Can anyone else?

Comments

Re: Feel when your seizures are coming on.

Submitted by bumpy2 on Tue, 2013-06-25 - 05:45
I have an aura, usually deja vu (the feeling that you have been somewhere/heard something before). I find I am not triggered by strobe lights (thankfully) but sometimes repetitive sounds can bring on a seizure (such as music with trance repetitions). I also get the thing in the stomach some people have mentioned. Its very strange because it has a comforting feeling, like a warmth spreading from the stomach up and it feels like the World has stopped. My seizures are well controlled but it's always worth keeping a diary of your mood/sleep/tiredness levels etc as this may indicate a pattern leading up to seizures. I am a single mother to a 9 year old and a 6 year old and we have a code word for when I have an aura so they know I may have a Grand Mal coming and we have a plan how to manage the situation. Hope this helps

Re: Feel when your seizures are coming on.

Submitted by Bgaiam on Sat, 2013-06-29 - 02:26
Yes, I feel sort of "hyper tired". It is hard to explain. If its bad I might also get a myoclonic jerk. If I lie down or relax and take a couple atavan it passes after an hour or so without a seizure developing. But if I am in this state, a few things can bring me to seizure, usually if I have to concentrate or think about a problem or am answering questions. Luckily this happens infrequently for me and I don have regular seizures, mine are also extremely predictable timing wise due to my menstrual cycle so I am extra extra careful during certain days (no alcohol, no driving, try to get enough sleep). I carry my rescue atavan 24/7 but am seizure free for 3 years now and plan to never have another tonic clinic again. Fingers crossed.

Re: Feel when your seizures are coming on.

Submitted by plutonium on Tue, 2013-07-02 - 23:58
yup i feel really weird... i will be thinking of some weird looking animal that i remembered seeing .. i know it sounds silly but that is what happens to me... and then bam.. im sitting up or lying down with no time laspe but it has been awhile .. but a couple of times lately i felt one coming on but it did not kick in completly i did not pass out ..but i made sure i was sitting down... everyone has different ways of knowing when it is going to start...

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