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Doubting and Mistreatment

Fri, 06/21/2013 - 14:17

Topic: Living With Epilepsy - Adults

Since I had my first grand mal and was diagnosed, I've had a lot of family members act like I "made it up" or I'm faking it. They don't believe I'm actually sick. I have seizures almost every day- mostly in my sleep. I have grand mals and partial seizures. I'm scarred up from head to toe. And, they just wave their hands at me like i'm some kind of outcast. The seizures came out of the blue when I was in my 30s, so they don't believe it. Has anyone else had to deal with this? How do you deal with it? Doctors in the emergency room are SO RUDE, and don't want to deal with it so they wave me off when I'm sick from it (can't hold down food, etc...). I'm sick of people acting like I'm some kind of freak of nature! I feel like I don't belong...

Comments

Re: Doubting and Mistreatment

Submitted by plutonium on Wed, 2013-07-03 - 17:45

I am sorry to hear that you are going through this with your husband ...but one thing he got right is that seizures are in our mind/brain...so he should understand... but I am a man and we cannot take our lady acting mean with us for any reason we are simple like that.. I am not saying it is ok though .. but maybe the doctor has to explain this to him not the spouse/ you....and he is scared of his wife/ you having these problems...and he does not know how to comprehend or handle this brain problem

Re: Doubting and Mistreatment

Submitted by sam1am on Wed, 2013-06-26 - 12:51

Together we can amaze, entertain and educate the public through entertaining stories of each person's specific Seizure in Public. I produced Spirit of a Subculture,Bike Messenger's in Chicago for WTTW/PBS. My next project will select 1 public entertaining story from 10 Epileptics embedded with information of our condition and lives surrounding the viewers.

For more info. go to; ambitiousmindsproductions.com

Sincerely Sam Inglese, Producer/Director/Epileptic

...

For more info. go to; ambitiousmindsproductions.com

Sincerely Sam Inglese, Producer/Director/Epileptic

...

Re: Doubting and Mistreatment

Submitted by rosanna1980 on Wed, 2013-06-26 - 17:14

My first seizure happened at age 30 in front of my coworkers. I had NO clue what had just happened, why everyone was standing around me, or how I got in that seat I was in. I just knew my head was throbbing and everyone was staring at me. When they told me I had a seizure, I didn't believe them and tried to get up and walk off, I was so upset by what I'd heard. I knew it was real when everyone almost in unison said "NO!" and made me hurry and sit back down. The most frustrating part is all the unanswered questions.....I had to ask my coworkers what happened because I had no memory of it......then it all snowballed- I lost my job, my income, family members, "friends", and on and on. I seems like just yesterday. I don't wish to share my experience in your production, but I'm definitely available to share my opinion, symptoms, etc.... anonomously.

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