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Feel when your seizures are coming on.

Mon, 06/24/2013 - 16:27
I am 18 years old and some times I can feel when a seizure is coming on. Can anyone else?

Comments

Re: Feel when your seizures are coming on.

Submitted by rebmil on Mon, 2013-06-24 - 17:20

Hello. I am 41 years old. I am not sure I feel when a seizure is coming on, but I do have auras many times before I have a seizure. I have grand mal seizures only when I am sleeping and several times before I go to bed the thought "You're going to have a seizure tonight" pops in my head and later that night I will wake up and had a seizure while I was sleeping. I don't always have an aura before I have a seizure, but there have been at least five times that I know of in the past that an aura I had led to a seizure later that night while I was sleeping. Maybe you are having auras?

 

Hello. I am 41 years old. I am not sure I feel when a seizure is coming on, but I do have auras many times before I have a seizure. I have grand mal seizures only when I am sleeping and several times before I go to bed the thought "You're going to have a seizure tonight" pops in my head and later that night I will wake up and had a seizure while I was sleeping. I don't always have an aura before I have a seizure, but there have been at least five times that I know of in the past that an aura I had led to a seizure later that night while I was sleeping. Maybe you are having auras?

 

Re: Feel when your seizures are coming on.

Submitted by vivaciousgemini22 on Mon, 2013-06-24 - 21:59

Yes I do. Every time I have a seizure I know when it is coming. I usually feel this sudden urge of anxiety and a tingling sensation in my stomach. These type of feelings are called auras and they warn you that a seizure is about to begin. What types of auras do you have when you have a seizure? I hope this helps you. :)

Yes I do. Every time I have a seizure I know when it is coming. I usually feel this sudden urge of anxiety and a tingling sensation in my stomach. These type of feelings are called auras and they warn you that a seizure is about to begin. What types of auras do you have when you have a seizure? I hope this helps you. :)

Re: Feel when your seizures are coming on.

Submitted by 3Hours2Live on Tue, 2013-06-25 - 04:48
Hi ChazStillFighting, I can feel my clusters of seizures coming on. I get vague warnings of clusters a couple days before the simple partial seizures of the cluster start. The initial simple partial seizures of a cluster are unique enough to give a feeling of warning of near certainty hours before more intense seizures in a progressive cluster strike me. Before secondarily generalized tonic-clonic seizures became frequent during the crescendo in a cluster, decades ago, I could prevent the seizures from becoming worse by simply staying awake. But once sleep would overcome me, the seizures would always increase in intensity, further disrupting my night's sleep, and becoming worse up to a peak the following day while awake, then slowly declining in intensity and frequency into the following night and the next day. My non-clustered seizures are usually without any warning and are mainly just simple partial seizures as aura, now most always distinct from the aura in the clusters (all of my seizures tend to disrupt my verbal behaviour hours around seizures, esp. during informal speech, noticeable to others as "strangely different" (more than two standard deviations from the general population's "normal")). A few of the seizures are, or are nearly, undetectable otherwise when I'm not speaking or attempting to speak. I posted a response about prodromals of seizures and migraines previously: The couple days or so of vague and somewhat unreliable clues that my fairly periodic clusters of seizures may be returning, roughly match the notion of prodromal symptoms. Prodromals involving epilepsy are variously defined, and I prefer definitions that are applicable to migraines also, though the emotional aspects for me are different for cluster seizures versus my migraines, the time-spans of both types of prodromals average around a couple days when they are more accurate premonitions. "Prodromes & Premonitions" should be distinguished from epileptic aura, as clarified in "Wyllie's Treatment of Epilepsy: Principles and Practice" by Wyllie, Cascino, Gidal, & Goodkin (2012), page 144 (this book gives the example of family & friends noticing the person's irritability or "a mean streak" that the person may be unaware of in their expressions): http://books.google.com/books?id=j9t6Qg0kkuUC&pg=PA616&lpg=PA616&dq=%22More+frequently,+for+hours+to+days+before+attacks,+%22&source=bl&ots=PguJrjySF8&sig=lFAGADzO-5RMzvwCcfSM-TEccDk&hl=en&sa=X&ei=feemUY3aBYjniAL5vYH4Cw&ved=0CC0Q6AEwAA#v=onepage&q=%22More%20frequently%2C%20for%20hours%20to%20days%20before%20attacks%2C%20%22&f=false (In my later years, ) During extended clusters of seizures, it can be difficult to place pre-ictals, ictals, and post-ictals in associated order, esp. when the ictals are strong and more quickly repeating, nearing Acute Repetitive Seizures and/or convulsive/nonconvulsive status epilepticus. Tadzio

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