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Epilepsy and the burdens of not driving.

Thu, 06/13/2013 - 13:17
Here's a link to my newest blog post about my struggles with losing my license due to seizures. I'd appreciate it you could read it and shar it on FB or Twitter if you like it. Thanks in advance! http://ktslagle.wordpress.com/2013/06/13/driving-miss-katie/ Here's another link to blog post about living with epilepsy. http://ktslagle.wordpress.com/2013/06/05/the-epileptic-werewolf/ Thanks friends.

Comments

Re: Epilepsy and the burdens of not driving.

Submitted by katfaerie on Sat, 2013-06-15 - 19:34
THANKS FOR READING! The more we all talk about epilepsy, the better!!!

Re: Epilepsy and the burdens of not driving.

Submitted by dpkhandro on Mon, 2013-06-17 - 16:51
Last month my new neurologist told me my only hope for being able to drive again with complex partial seizure epilepsy would be to have surgery. I had an MRI to see if there might be something to do surgery on. The thought of surgery was terrifying, but the thought of never being able to drive again was worse. Well, "good news"! Like 90 % of patients with epilepsy, the MRI was normal. Not a surgical candidate. Not even a choice about it. There you go. I read your blog and it made me cry. I miss those days of just going to the store alone, or driving up to a mineral spring for the day, or having tea with a friend. I hate asking people for a ride and so I am very isolated. I have been left stranded at my office late in the evening by taxi drivers who never showed up. So, no, Katie, you are not alone. I hope that helps a teensy bit.

Re: Epilepsy and the burdens of not driving.

Submitted by just_joe on Thu, 2013-07-04 - 18:22

I understand where most of you are comming from. I also know what it is like not driving. But then I have been dealing with my epilepsy for over 50 years which is longer than some of you have been alive. I also know that medications today are targeting certain parts of the brain and are not downers like the ones I was taking when I was a teen and into my 20's.

Understand that advances are being made now that can assist in stopping the seizures. So do as some of us older folks have done and deal with your handicap. I have had friends tell me I shouldn't have been working. I let them know I was able to do everything they were and do it better when it came to the work we were doing.

What can be helpful is doing resraech and Creating a essay or paper on Epilepsy showing the different typs and causes. Some info on medications and deffinately state what to do if someone is in a seizure. Talk to schools or companies and let them read it or maybe even have you read it to their employees.  The essay I wrote in jr high was read to the whole school in an assembly. I had to read it in from of every class my english and scince teacher had. I then gave it to the vice princeable who had it read in assemblies for I know the next 8 years.

Also understand that back in the 60's there were people who put epileptics away in homes.

I can say that I wouldn't be alive today if it weren't for a Mothers prayer. 

I understand where most of you are comming from. I also know what it is like not driving. But then I have been dealing with my epilepsy for over 50 years which is longer than some of you have been alive. I also know that medications today are targeting certain parts of the brain and are not downers like the ones I was taking when I was a teen and into my 20's.

Understand that advances are being made now that can assist in stopping the seizures. So do as some of us older folks have done and deal with your handicap. I have had friends tell me I shouldn't have been working. I let them know I was able to do everything they were and do it better when it came to the work we were doing.

What can be helpful is doing resraech and Creating a essay or paper on Epilepsy showing the different typs and causes. Some info on medications and deffinately state what to do if someone is in a seizure. Talk to schools or companies and let them read it or maybe even have you read it to their employees.  The essay I wrote in jr high was read to the whole school in an assembly. I had to read it in from of every class my english and scince teacher had. I then gave it to the vice princeable who had it read in assemblies for I know the next 8 years.

Also understand that back in the 60's there were people who put epileptics away in homes.

I can say that I wouldn't be alive today if it weren't for a Mothers prayer. 

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