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Left Temporal Lobectomy

Fri, 05/10/2013 - 18:00

Hello everyone,

I have dealt with epilepsy since I was 2 years old. I'm going to turn 22 in a month. My epilepsy was controlled for most of my life until I started having these "episodes" where I would get very anxious, then my heart would begin to beat really fast. Afterwards, my head would turn to the right and I would start seeing flashing lights in my right eye. At times, my head would go back and forth. Then, I would snap right out of it like magic. I remember each episode and record in my seizure journal. I was admitted into the epilepsy monitoring unit at University Hospitals 2 years ago and found out my seizures are starting in my left temporal lobe. I take 2 different medications for my epilepsy and have been through maybe 13 increases. My doctors told me this is going to be my last increase before they consider giving me epilepsy surgery. I do believe that they might give me a temporal lobectomy if this medicine doesn't work. I wanted to learn more about this surgery and the risks that comes with it. I would really appreciate it. Thank you!

Comments

Re: Left Temporal Lobectomy

Submitted by RTL on Sat, 2013-05-11 - 15:48

Holly,

I had right-side surgery, details here:

http://users.eastlink.ca/~kehoe/surgery/

Kevin

 

 

Holly,

I had right-side surgery, details here:

http://users.eastlink.ca/~kehoe/surgery/

Kevin

 

 

Re: Left Temporal Lobectomy

Submitted by vivaciousgemini22 on Sat, 2013-06-08 - 12:03
I read your story about your right temporal lobectomy. It was extremely insightful and encouraging. As of right now, I am 2 weeks and 6 days seizure- free. So if I ever receive the left temporal lobectomy I will keep your story in mind. It's wonderful. Thank you so very much for sharing your experience with me. It is much appreciated. :)

Re: Left Temporal Lobectomy

Submitted by keek on Wed, 2013-06-05 - 23:27
Kevin, your link to your description of your own experiences with your RTL surgery is fascinating, and quite helpful as I consider pro's and con's. thanks! --Tom

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