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Nocturnal Seizures / Night seizures

Wed, 09/30/2009 - 19:45
Hello, My name is Danny I am 27 and have been dealing with seizures since 2004. Never before that date have i had one sigh of seizures. it has been one of the worst and hardest battles i have been dealing with also. one questions i have is that the seizures i have are weird, starting like this all the seizures i have had to this day were at night after i had woken up from sleeping, i would wake up have to pee and in a sweat which is weird.  also i have never had any during the day but i have had several grand mal seizures at night like i said. so if anyones has any ideas why this happens please let me know and hope all of you are doing better with your epilepsy.

Comments

Re: Nocturnal Seizures / Night seizures

Submitted by johnmcd75 on Wed, 2013-05-29 - 18:03

Hello-

My son is 9 and has gelastic seizures at night, though they started in the day and now seem to be kept to night time with meds.  He was having 40 of these episodes per day with the majority coming at night.  Even with meds he has 5-10 each night-

 He has had 1 tonic clonic seizure but was not on any meds at the time because the Doctors told us his seizures were a nervous tic.  You have found someone else like you-

Hello-

My son is 9 and has gelastic seizures at night, though they started in the day and now seem to be kept to night time with meds.  He was having 40 of these episodes per day with the majority coming at night.  Even with meds he has 5-10 each night-

 He has had 1 tonic clonic seizure but was not on any meds at the time because the Doctors told us his seizures were a nervous tic.  You have found someone else like you-

Re: Nocturnal Seizures / Night seizures

Submitted by 2nd-2-None on Thu, 2013-06-06 - 14:31

2nd-2-None

In regards to "night seizures," I have been tested for sleep apnea and several other sleep disorders. The final verdict was that I was suffering from Myoclonic Epilepsy/Seizures. This type of Epilepsy causes endless fatigue due to the fact that it's only trigger is when your right about to fall asleep or awaken by sleep. For instance, if I have trouble sleeping at night, I try to make up for the lack of sleep through the day. However, when I try to sleep in the day the symptoms are still there...only worse. These Seizures feel as if your having a dream where your falling off a building and your body jolts. 

I hope this helps anybody out there. My proper diagnosis was not made until I had a five day sleep study with a nurse constantly sitting by my side in a chair. Luckily the nurses changed shifts and made me feel as ease, heck, they even made me laugh.

Keep your heads up. 

2nd-2-None

In regards to "night seizures," I have been tested for sleep apnea and several other sleep disorders. The final verdict was that I was suffering from Myoclonic Epilepsy/Seizures. This type of Epilepsy causes endless fatigue due to the fact that it's only trigger is when your right about to fall asleep or awaken by sleep. For instance, if I have trouble sleeping at night, I try to make up for the lack of sleep through the day. However, when I try to sleep in the day the symptoms are still there...only worse. These Seizures feel as if your having a dream where your falling off a building and your body jolts. 

I hope this helps anybody out there. My proper diagnosis was not made until I had a five day sleep study with a nurse constantly sitting by my side in a chair. Luckily the nurses changed shifts and made me feel as ease, heck, they even made me laugh.

Keep your heads up. 

Re: Nocturnal Seizures / Night seizures

Submitted by wolfie_2004 on Thu, 2013-11-07 - 13:41
Hello, my name is Brian and I am 35 years old. I had my first seizure when I was 19 in the Air Force. I woke up to one and it started in my right foot then traveled up my right leg and eventually overtook my body. The feeling was that of being electricuted but there was no way that could have happened. The military diagnosed me as having complex partial seizures however nothing showed up on any MRI's of EEG's. Over the years, the seizures have changed but still only occur in my sleep or as I wake up. The way they are now is that in the early morning hours, typically around 5am-6ish I will wake up to pee, go back to bed and feel jittery inside (mainly on my right side.) It feels like I am twitching on the inside or imagine if you were looking at a circuit board and a wire was loose what it would be doing. That is what I describe to my neurologist. I won't let anyone touch me and wear very loose clothing to bed or nothing at all from the waist down. If I get touched on my right side it can put me into a seizure and feels like my nerve endings are at the surface. A full episode does not happen that often, I have a routine that seems to help. I take a lorazapam or two, have some hot tea and turn the t.v. on. I have had countless MRI's and EEG's, a sleep study and nerve conduction test with all coming back negative and showing nothing. It is so frustrating to me that the doctors have no clue as to what is going on and I feel very stupid. I am currently taking lamotrigine after being on topiramate for many years. If anyone has any imput, please give it to me. I need help.

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