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Nocturnal Seizures / Night seizures

Wed, 09/30/2009 - 19:45
Hello, My name is Danny I am 27 and have been dealing with seizures since 2004. Never before that date have i had one sigh of seizures. it has been one of the worst and hardest battles i have been dealing with also. one questions i have is that the seizures i have are weird, starting like this all the seizures i have had to this day were at night after i had woken up from sleeping, i would wake up have to pee and in a sweat which is weird.  also i have never had any during the day but i have had several grand mal seizures at night like i said. so if anyones has any ideas why this happens please let me know and hope all of you are doing better with your epilepsy.

Comments

Re: Nocturnal Seizures / Night seizures

Submitted by Aseneth on Sat, 2012-12-08 - 20:13

Hi, Emily.  My symptoms sound a lot like yours.  I am 58, and became aware of a problem 2 years ago, but probably I had seizures before then, as I look back on it now.  I wake between 2 a.m. and 6 a.m., have to go to the bathroom urgently (the runs), and frequently black out.  I have had concussions, two broken noses, etc.  The next day after the episode I am exhausted, and have no appetite.  For 2 years the doctors thought it was a GI problem, and that I 'fainted" because i had lost fluid with the nausea and diarrhea--even though I told them that sometimes I fainted BEFORE losing a lot of fluid.  Anyway, finally someone suggested an EEG, and it was abnormal.  So was the second. I am currently waiting the results of a 24 hours EEG, and then the doctor will probably prescribe meds.  Hope things go well with you and they can get this under control!

 

Hi, Emily.  My symptoms sound a lot like yours.  I am 58, and became aware of a problem 2 years ago, but probably I had seizures before then, as I look back on it now.  I wake between 2 a.m. and 6 a.m., have to go to the bathroom urgently (the runs), and frequently black out.  I have had concussions, two broken noses, etc.  The next day after the episode I am exhausted, and have no appetite.  For 2 years the doctors thought it was a GI problem, and that I 'fainted" because i had lost fluid with the nausea and diarrhea--even though I told them that sometimes I fainted BEFORE losing a lot of fluid.  Anyway, finally someone suggested an EEG, and it was abnormal.  So was the second. I am currently waiting the results of a 24 hours EEG, and then the doctor will probably prescribe meds.  Hope things go well with you and they can get this under control!

 

Re: Nocturnal Seizures / Night seizures

Submitted by 9livecat on Sun, 2013-05-26 - 18:09
i've fainted before the EMT said i beat the widow maker, but the ER doctor said i had a seizure. each time that i have fainted i felt like i had a elephant sitting on my chest, they thought i was having a heart attack. the ER only treated for what they thought was a heart problem. they NEVER sent for a neurologist. i told the ambulance guys i was having a seizure.

Re: Nocturnal Seizures / Night seizures

Submitted by rebmil on Sat, 2011-12-31 - 12:54

Hello Danny. I am a 40 yr. old woman who started having grand mal seizures in my sleep 2 yrs. ago on March 12, 2009. Never had them in my life before. First seizure I was taken to the hospital. Nothing was done. 2 months later on May 9. had 2 seizures 2 hrs apart. Taken to hospital again. Was given anti-seizure medication, had MRI and CAT scan. all normal. Dr.'s took my blood, it was normal. Later I had EEG, normal too. The dr. don't know what is causing my seizures. I take Phenytoin 100mg 2 a day and an anxiety pill for the nausea. So far I have had 10 seizures and 4 aura's. I wake up from seizures confused knowing something happened but not sure what until I get my bearings back. I have extreme headaches that last for 2-3 hrs. after seizure, I have extreme nausea, tongue bitten, peed pants and weak legs. Like you, I too only have seizures in my sleep. I don't know what is causing your seizures. They can be caused from head injury, blood vessel malformations in the brain. low calcium, magnesium levels, infections in the brain. Any number of things can cause seizures. What I have noticed by being on here, there are many more people today having seizures than they have had 10-20 yrs. ago. Seizures take alot of energy from us, hence the sweating, and they use up alot of calories too. I have noticed since my seizures, I am hungry all the time. The only thing I can tell you is go see a dr. and get a sleep MRI done so they can know what seizure type you actually have. Each seizure has its own brain waves and there are over 40 different seizure types. I think you have Nocturnal Seizure Disorder, same with me. Seizures that only happen while sleeping. This seizure type is not very well known and dr. don't know much about it. Hope this helps you and good luck with your seizures.

 

Hello Danny. I am a 40 yr. old woman who started having grand mal seizures in my sleep 2 yrs. ago on March 12, 2009. Never had them in my life before. First seizure I was taken to the hospital. Nothing was done. 2 months later on May 9. had 2 seizures 2 hrs apart. Taken to hospital again. Was given anti-seizure medication, had MRI and CAT scan. all normal. Dr.'s took my blood, it was normal. Later I had EEG, normal too. The dr. don't know what is causing my seizures. I take Phenytoin 100mg 2 a day and an anxiety pill for the nausea. So far I have had 10 seizures and 4 aura's. I wake up from seizures confused knowing something happened but not sure what until I get my bearings back. I have extreme headaches that last for 2-3 hrs. after seizure, I have extreme nausea, tongue bitten, peed pants and weak legs. Like you, I too only have seizures in my sleep. I don't know what is causing your seizures. They can be caused from head injury, blood vessel malformations in the brain. low calcium, magnesium levels, infections in the brain. Any number of things can cause seizures. What I have noticed by being on here, there are many more people today having seizures than they have had 10-20 yrs. ago. Seizures take alot of energy from us, hence the sweating, and they use up alot of calories too. I have noticed since my seizures, I am hungry all the time. The only thing I can tell you is go see a dr. and get a sleep MRI done so they can know what seizure type you actually have. Each seizure has its own brain waves and there are over 40 different seizure types. I think you have Nocturnal Seizure Disorder, same with me. Seizures that only happen while sleeping. This seizure type is not very well known and dr. don't know much about it. Hope this helps you and good luck with your seizures.

 

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