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Nocturnal Seizures / Night seizures

Wed, 09/30/2009 - 19:45
Hello, My name is Danny I am 27 and have been dealing with seizures since 2004. Never before that date have i had one sigh of seizures. it has been one of the worst and hardest battles i have been dealing with also. one questions i have is that the seizures i have are weird, starting like this all the seizures i have had to this day were at night after i had woken up from sleeping, i would wake up have to pee and in a sweat which is weird.  also i have never had any during the day but i have had several grand mal seizures at night like i said. so if anyones has any ideas why this happens please let me know and hope all of you are doing better with your epilepsy.

Comments

Re: Nocturnal Seizures / Night seizures

Submitted by danp26 on Sat, 2011-12-31 - 16:34

Hello,

I have just had my meds changed from Phenytoin to Lamotrigine after nealry 9 years as i am concerned about the effects of whats called 'phenytoin syndrome' something to look out for if you are on phenytoin for any prolonged period.

Take care

Danny

Hello,

I have just had my meds changed from Phenytoin to Lamotrigine after nealry 9 years as i am concerned about the effects of whats called 'phenytoin syndrome' something to look out for if you are on phenytoin for any prolonged period.

Take care

Danny

Re: Nocturnal Seizures / Night seizures

Submitted by rctcrainbowchick13 on Mon, 2012-02-20 - 21:27
Hi everybody. Last Tuesday I had a sleep study done and there's evidence of seizure activity while I'm out cold. My boyfriend has told me that I seize in my sleep as well. I was at the study because my doctors were certain I have a form of sleep apnea. By reading the comments on here, I guess my sleep apnea (which is mild in my case) could really be causing my night time seizures. I have to wait until I get my insurance issue solved before I can get my CPAP machine and equipment. My old insurance ended at the end of January and my social worker said that I shouldn't have any gaps. It's been several weeks and I still haven't received my ID card from UCare. They said to call my social worker, so I did and I have to wait for her to call me back since the offices were closed today. I have to call my epileptologist, too and see what he says we should do.

Re: Nocturnal Seizures / Night seizures

Submitted by 9livecat on Sun, 2013-05-26 - 17:57
before you get that CPAP device, there is a mouth piece device that repositions the jaw to fix the sleep apnea problem and it's way less expensive than the CPAP around $10.

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