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Nocturnal Seizures / Night seizures

Wed, 09/30/2009 - 19:45
Hello, My name is Danny I am 27 and have been dealing with seizures since 2004. Never before that date have i had one sigh of seizures. it has been one of the worst and hardest battles i have been dealing with also. one questions i have is that the seizures i have are weird, starting like this all the seizures i have had to this day were at night after i had woken up from sleeping, i would wake up have to pee and in a sweat which is weird.  also i have never had any during the day but i have had several grand mal seizures at night like i said. so if anyones has any ideas why this happens please let me know and hope all of you are doing better with your epilepsy.

Comments

Re: Nocturnal Seizures / Night seizures

Submitted by seet on Mon, 2012-10-29 - 18:19

Hi Sarae,

I am writing just to see how things are going, and if you got any results back, or if youve had more seizure since, did you end up taking medication etc?

The reason why I am interested is because I am in/was a similar situation, except my first seizure was 3 weeks after my son was born (he is 7 and a half months now). Same deal where I was woken up in the middle of the night, with the paramedics already there. I was taken into hospital, I had a bunch of tests done (as they thought it was some kind of seizure you can get as a new mum). Nothing showed up, so I was sent to a specialist, had an EEG done and two MRI's, everything showed up that there was a SLIGHT difference between the temporal lobes, but nothing massive, so probably in the normal range. My neurologist said I have temporal lobe epilepsy after I described to him what apparently is one of those partial seizures or deja vus, whatever. And he wanted me to start taking medication. I said no way, because I was breastfeeding AND I thought all of that was B.S, as a new mum (you would know too as a mum of two!) that you can go into lala land "deja vu" time with the awesome amount of sleep you get with a tiny new bub :).

BUT, I got another seizure about 2 weeks ago, was woken up the same way, ended up in hospital again, cant remember a thing about it, hehe just the bitten tongue again ;). So they said I have no choice but to take the meds, have been on 2 x 500mg of keppra since, seeing the specialist today.

So how are you going? What ended up happening? Have you been diagnosed with anything? Are you taking medication? Have you had any other seizures? Were they at night too? Or what it is caused by?

By the way, I am in Australia and I am 26 years old. And I just thought it would be cool to get a comparison, BUT if you dont want to/cant be bothered/dont have time etc, all is well and understood :)

Cheers :) 

Hi Sarae,

I am writing just to see how things are going, and if you got any results back, or if youve had more seizure since, did you end up taking medication etc?

The reason why I am interested is because I am in/was a similar situation, except my first seizure was 3 weeks after my son was born (he is 7 and a half months now). Same deal where I was woken up in the middle of the night, with the paramedics already there. I was taken into hospital, I had a bunch of tests done (as they thought it was some kind of seizure you can get as a new mum). Nothing showed up, so I was sent to a specialist, had an EEG done and two MRI's, everything showed up that there was a SLIGHT difference between the temporal lobes, but nothing massive, so probably in the normal range. My neurologist said I have temporal lobe epilepsy after I described to him what apparently is one of those partial seizures or deja vus, whatever. And he wanted me to start taking medication. I said no way, because I was breastfeeding AND I thought all of that was B.S, as a new mum (you would know too as a mum of two!) that you can go into lala land "deja vu" time with the awesome amount of sleep you get with a tiny new bub :).

BUT, I got another seizure about 2 weeks ago, was woken up the same way, ended up in hospital again, cant remember a thing about it, hehe just the bitten tongue again ;). So they said I have no choice but to take the meds, have been on 2 x 500mg of keppra since, seeing the specialist today.

So how are you going? What ended up happening? Have you been diagnosed with anything? Are you taking medication? Have you had any other seizures? Were they at night too? Or what it is caused by?

By the way, I am in Australia and I am 26 years old. And I just thought it would be cool to get a comparison, BUT if you dont want to/cant be bothered/dont have time etc, all is well and understood :)

Cheers :) 

Re: Nocturnal Seizures / Night seizures

Submitted by 9livecat on Sun, 2013-05-26 - 17:46
i'm 52 yrs. lady, i don't have kids however, when i don't get enough sleep , or work on a rotating shift, i'm more likely to have seizures. but as far as having to deal with epilepsy, those of us who have our seizures only at nite while sleeping and like that, we are the lucky ones. yes because during our regular waking hours, we can expect to be seizure free, and be cleared to drive. i'm in texas,where if your seizures are in control it's ok for a person to drive.

Re: Nocturnal Seizures / Night seizures

Submitted by mellion on Thu, 2013-06-06 - 12:05

Hi,

I have had parisomias (sleep  walking talking, chanting, climbing up on items, moving things, and doing funny things with my body position) and seizures at night ALL my life. I have generalized during day, but only every few years with Lamictal.  My Doc referred me to Psychiatrist for medication to keep me more alert during the day.  I was ALWAYS sleepy.  I feel asleep while at the Dallas Cowboys football game (at the stadium watching). Since on Provigil my day time sleepy problem has almost gone away, and night time episodes have decreased.  I find that when I am stressed they increase..  Hope this helps. My daytime sleepy medicine has greatly improved my life.  

Hi,

I have had parisomias (sleep  walking talking, chanting, climbing up on items, moving things, and doing funny things with my body position) and seizures at night ALL my life. I have generalized during day, but only every few years with Lamictal.  My Doc referred me to Psychiatrist for medication to keep me more alert during the day.  I was ALWAYS sleepy.  I feel asleep while at the Dallas Cowboys football game (at the stadium watching). Since on Provigil my day time sleepy problem has almost gone away, and night time episodes have decreased.  I find that when I am stressed they increase..  Hope this helps. My daytime sleepy medicine has greatly improved my life.  

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