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confused

Wed, 05/01/2013 - 17:47
I've finally got my grandmall seizures under control last year I am 30yrs. old ive had many types of seizure since I was 9 but never had an aurea but now all of a sudden since I got my grad mal seizures under control there has been a few times were i'm aware of my surroundings my body automatically will sit itself down it feels like the whole inside of my body is shaking im actually aware of whats going on I can't hear when people are calling my name and I just stare in to space could I be having some kind of seizure it scares the hell out of me I don't know what to think

Comments

Re: confused

Submitted by Jennifer01 on Fri, 2013-05-10 - 12:56

I have experienced something similar.

Which medication(s) do you take? This is how is was best described to me:

Some medications work to prevent seizures but also slow them down once they are sensed in the brain. Long story short, seizure activity may have started and the medications literally makes the brain slow down all activity. It is scary to go through because you can sense that something is wrong. I have also found, these episodes last longer than the actual GM would have.

I have experienced something similar.

Which medication(s) do you take? This is how is was best described to me:

Some medications work to prevent seizures but also slow them down once they are sensed in the brain. Long story short, seizure activity may have started and the medications literally makes the brain slow down all activity. It is scary to go through because you can sense that something is wrong. I have also found, these episodes last longer than the actual GM would have.

Re: confused

Submitted by teachergreen on Wed, 2013-05-15 - 21:10

hi jennifer,

i take dilantin 350mg once a day. this has been helpful at controlling gm seziures. i've been on it 20yrs. my neurologist tried to ween me off and put me on BANZEL. This was hell. after i was up to the set dosage i started getting sick. no appetite but what i would eat, throw up, stayed in bed because of wobbliness, too scared to walk, headache,crying, lost 30lbs. family was very scared. i weened off the banzel and came back to dilantin. so far no gran mal.

i take lamital (lomotrigene) for partials. I have these 3-6 a months but can go a couple of months without one.  I also use a vns.  This is very helpful. my family and I've stopped seizures.  I'd be there watching tv and the person on the tv was talking and totally not making sence. i felt like i was about to "zone out" , used the magnet and talked myself out of going into a seizure. The implanted vns can stop the seizure or make it less intense.  I tell everyone around me about it including the casino dealer.  "Head's up, learn something new everyday".

My career as a teacher is over and i spend most of my days at home, safe. I keep busy by playing the guitar. Even teach the neighbor girls how to play. I read alot, write in journal, puzzles are fun. i like working in the backyard. Going to church to help out. Use the computer. Still would like to be more skilled in this area. Go to movies a lot with my husband. Friends and extended family have not been supportive.  and i can live with this.

Yes, seizures are scary but so many people have it worse off then me. God must have a plan for me and my situation.  I wake each morning and am grateful.

Lynda

hi jennifer,

i take dilantin 350mg once a day. this has been helpful at controlling gm seziures. i've been on it 20yrs. my neurologist tried to ween me off and put me on BANZEL. This was hell. after i was up to the set dosage i started getting sick. no appetite but what i would eat, throw up, stayed in bed because of wobbliness, too scared to walk, headache,crying, lost 30lbs. family was very scared. i weened off the banzel and came back to dilantin. so far no gran mal.

i take lamital (lomotrigene) for partials. I have these 3-6 a months but can go a couple of months without one.  I also use a vns.  This is very helpful. my family and I've stopped seizures.  I'd be there watching tv and the person on the tv was talking and totally not making sence. i felt like i was about to "zone out" , used the magnet and talked myself out of going into a seizure. The implanted vns can stop the seizure or make it less intense.  I tell everyone around me about it including the casino dealer.  "Head's up, learn something new everyday".

My career as a teacher is over and i spend most of my days at home, safe. I keep busy by playing the guitar. Even teach the neighbor girls how to play. I read alot, write in journal, puzzles are fun. i like working in the backyard. Going to church to help out. Use the computer. Still would like to be more skilled in this area. Go to movies a lot with my husband. Friends and extended family have not been supportive.  and i can live with this.

Yes, seizures are scary but so many people have it worse off then me. God must have a plan for me and my situation.  I wake each morning and am grateful.

Lynda

Re: confused

Submitted by seizuresrapain on Wed, 2013-05-15 - 12:51

im on keppra and lamictal I havnt told anyone that im having these im not sure what to think or do what would they be considered

 

im on keppra and lamictal I havnt told anyone that im having these im not sure what to think or do what would they be considered

 

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