Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Irritated and needing answers

Thu, 05/09/2013 - 08:34

All I am needing is feedback.  I know that I will not get professional input, but to be honest, right now I am not looking for that.  Here is my story and I will express my frustration at the end.

 I was diagnosed at 12 and praise God I have extremely well controlled epilepsy with my lamotrogine.  I have been on 2 100mg in the a.m. and 1 100mg at night.  I had an EEG 6 years ago when I was pregnant.  In all those years I have had 4 seizures.  1 due to a virus and could not keep my meds in, 1 neglecting getting my meds in regularly, 1 metabolism changing due to being pregnant and my most recent unsure, but have my theory.  I had been seizure free for 2 years. It is so well managed there was no need for a neurologist.

 Now for my theory and question: I have been on the same med and dose for 6 almost 7 years.  My husband travels and works a lot.  I am alone a lot! I have three young children.  My family doctor (which I have only had for a month) wanted me to se a neurologist.  When I went I today I wanted to know if d my dose not be sufficient enough for me anymore.  She wants me to wait and get my blood work in a week.  In the meantime, she is changing my med to 300 extended release and sending me for an EEG. I had the results of my EEG with me. My question is; Is this EEG necessary? If this blood work comes back and we find it is low, do I need the EEG? Once again, my epilepsy is extremely well managed! Something triggered this, but instead of doing a repeat EEG is it ok to want to start with a med change first.

 Also to mention I have extremely low vitamin D.  I have read that can cause a breakthrough seizure.

Any feedback is appreciated. I know I do not get advice approved by a doctor.  I want feed back from people who know life with epilepsy. I know it may seem like I am being unreasonable with wondering this. I am just a little frustrated at this point.

Comments

Re: Irritated and needing answers

Submitted by mygirl071980 on Thu, 2013-05-09 - 16:20

WOW, very interesting! Thanks for sharing with me!

I feel like she is starting me over from scratch instead of going forward from what is happening now.  It is very well managed! I go years without one.  So, I don't think my type of epilepsy has changed.  The only changes have been physical.  I have three kids so of course there are days I am dragging.  I am almost 7 years older and have never had a medicine increase. Plus, my Vitamin D is severely low!  

Once again thank you for sharing your story with me!

I am very anxious for tomorrow!

WOW, very interesting! Thanks for sharing with me!

I feel like she is starting me over from scratch instead of going forward from what is happening now.  It is very well managed! I go years without one.  So, I don't think my type of epilepsy has changed.  The only changes have been physical.  I have three kids so of course there are days I am dragging.  I am almost 7 years older and have never had a medicine increase. Plus, my Vitamin D is severely low!  

Once again thank you for sharing your story with me!

I am very anxious for tomorrow!

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.