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Irritated and needing answers
Thu, 05/09/2013 - 08:34All I am needing is feedback. I know that I will not get professional input, but to be honest, right now I am not looking for that. Here is my story and I will express my frustration at the end.
I was diagnosed at 12 and praise God I have extremely well controlled epilepsy with my lamotrogine. I have been on 2 100mg in the a.m. and 1 100mg at night. I had an EEG 6 years ago when I was pregnant. In all those years I have had 4 seizures. 1 due to a virus and could not keep my meds in, 1 neglecting getting my meds in regularly, 1 metabolism changing due to being pregnant and my most recent unsure, but have my theory. I had been seizure free for 2 years. It is so well managed there was no need for a neurologist.
Now for my theory and question: I have been on the same med and dose for 6 almost 7 years. My husband travels and works a lot. I am alone a lot! I have three young children. My family doctor (which I have only had for a month) wanted me to se a neurologist. When I went I today I wanted to know if d my dose not be sufficient enough for me anymore. She wants me to wait and get my blood work in a week. In the meantime, she is changing my med to 300 extended release and sending me for an EEG. I had the results of my EEG with me. My question is; Is this EEG necessary? If this blood work comes back and we find it is low, do I need the EEG? Once again, my epilepsy is extremely well managed! Something triggered this, but instead of doing a repeat EEG is it ok to want to start with a med change first.
Also to mention I have extremely low vitamin D. I have read that can cause a breakthrough seizure.
Any feedback is appreciated. I know I do not get advice approved by a doctor. I want feed back from people who know life with epilepsy. I know it may seem like I am being unreasonable with wondering this. I am just a little frustrated at this point.
Comments
Re: Irritated and needing answers
Submitted by mygirl071980 on Thu, 2013-05-09 - 15:26
With this doctor who knows. She gave me no information at all as to why she was doing it. Which is more frustrating than anything!
The seizure was the same ol, same ol, so to speak. I may very well be the one who was negligent as far as med at proper intervals. Really wish she would have checked my levels.
She is the first neuro I have seen who asked no questions about lifestyle or routines. I was very put off.
Fortunately, I got a second opinion coming tomorrow. If they say the same thing, then I will be happy to take the steps the first one mentioned. Although, will be changing to a new doctor. Bedside manner speaks volumes!
Thank you so much for your reply!!
With this doctor who knows. She gave me no information at all as to why she was doing it. Which is more frustrating than anything!
The seizure was the same ol, same ol, so to speak. I may very well be the one who was negligent as far as med at proper intervals. Really wish she would have checked my levels.
She is the first neuro I have seen who asked no questions about lifestyle or routines. I was very put off.
Fortunately, I got a second opinion coming tomorrow. If they say the same thing, then I will be happy to take the steps the first one mentioned. Although, will be changing to a new doctor. Bedside manner speaks volumes!
Thank you so much for your reply!!
Re: Irritated and needing answers
Submitted by Masterjen on Thu, 2013-05-09 - 14:07
Could be that your doctor is wondering if a new seizure focus has developed, or if the type of seizure you have has changed. Your doctor most likely appreciates your cause for concern, being alone and having 3 young kids, so I expect your doctor just wants to cover all basis.