All I am needing is feedback. I know that I will not get professional input, but to be honest, right now I am not looking for that. Here is my story and I will express my frustration at the end.
I was diagnosed at 12 and praise God I have extremely well controlled epilepsy with my lamotrogine. I have been on 2 100mg in the a.m. and 1 100mg at night. I had an EEG 6 years ago when I was pregnant. In all those years I have had 4 seizures. 1 due to a virus and could not keep my meds in, 1 neglecting getting my meds in regularly, 1 metabolism changing due to being pregnant and my most recent unsure, but have my theory. I had been seizure free for 2 years. It is so well managed there was no need for a neurologist.
Now for my theory and question: I have been on the same med and dose for 6 almost 7 years. My husband travels and works a lot. I am alone a lot! I have three young children. My family doctor (which I have only had for a month) wanted me to se a neurologist. When I went I today I wanted to know if d my dose not be sufficient enough for me anymore. She wants me to wait and get my blood work in a week. In the meantime, she is changing my med to 300 extended release and sending me for an EEG. I had the results of my EEG with me. My question is; Is this EEG necessary? If this blood work comes back and we find it is low, do I need the EEG? Once again, my epilepsy is extremely well managed! Something triggered this, but instead of doing a repeat EEG is it ok to want to start with a med change first.
Also to mention I have extremely low vitamin D. I have read that can cause a breakthrough seizure.
Any feedback is appreciated. I know I do not get advice approved by a doctor. I want feed back from people who know life with epilepsy. I know it may seem like I am being unreasonable with wondering this. I am just a little frustrated at this point.