Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Name the BEST pediatric epilepsy dr/hospital - we will go ANYWHERE!

Thu, 09/07/2006 - 19:54
I am searching the world for the best pediatric epilepsy doctor or hospital for my 10 yr old son. We have been to MN, OH, and 3 different hospitals in Chicago,IL. All of them take on my son's case & then ignore us when things dont get any better. They talk of surgery, but dont set up the necessary tests - I call them repeatedly since hes not doing better, hes worse - they increase his medicine, it does nothing, they do nothing. They rarely return my calls - in the meantime, my son suffers, his schooling suffers, his social life suffers. PLEASE - can anyone recommend the best dr out there for him? I will go ANYWHERE - plane, train, automobile - my son has right frontal lobe intractable epilepsy with complex partial seizures. he also suffers from post-ictal psychosis on a regular basis. Thank you for your help.

Comments

Re feelin the same

Submitted by Tina Gallegos on Tue, 2010-02-16 - 12:49
Nice to hear im not the only one to feel this way! My daughter is 16 and has the same intractable epilepsy with complex partial seizures along with a secondary generalized! I have done everthing possible! I think it is the hardest thing going to different dr's explaining everthing & walking out with nothing different! I am in need of the same! 

Hi Engy;How did the surgery

Submitted by AW on Fri, 2017-06-23 - 18:57
Hi Engy;How did the surgery go?? my 10 years nephew is suffering of epilepsy.AW

I'm here in Maryland and I

Submitted by jonesjr on Thu, 2018-04-19 - 17:35
I'm here in Maryland and I can't find this Dr. GLAUNN you speak of if you are serious I need this info as soon as possible

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.