So, in all the databases I have checked, most issues on the actual impact of epilepsy on a person's sex life have mainly tested men and few academic journals in neuroscience have studied women other than to report irregular periods and sometimes difficulty with the big O....
I'm a graduate student graduating soon with my master in psychology with the hopes of getting into a doctorate program in neuropsych. I lost my dance career a few years ago when I developed epilepsy at 25 and after failed meds, I had a temporal lobectomy exactly three years prior to the week of my graduation in May (I was in ICU when my parents had flown in and brought me the acceptance letter from my local apartment.) I also work part-time for the Epilepsy Foundation doing a lot of event planning and fundraising. I still have auras at times, (especially times like now when I stay up all night trying to write papers!!!), and am still on Keppra, but the surgery helped immensely (after I finally accepted the idea of having it...I was pretty resistant for awhile!)
Anyhow, with all the access I have to academic journal databases, I cannot seem to find articles on the direct effect epilepsy has on women and their relationships, particularly when it comes to the physical components. Frankly, there aren't many stories on romantic effects in general, other than the fact that most of us become very lonely and depressed. Those articles tend to reveal the same kind of things looking up "depression and sex/romance" would. I completely understand what that kind of weight feels like, and have talked to a couple friends, but it's crazy how there are no big trials and not even many personal accounts. If anyone is willing to just give me any insight that I could add, I actually met with a well-known therapist in the area who works primarily with the families of those affected by epilepsy and she was telling me how sad it is that there is not a whole lot of research on women's issues with romance/sex; anything related is usually on the impact of epilepsy on pregnancy and hormones, which is extremely important, but being in in a Human Sexuality course, our final assignment was simply to write a paper on ______________ and sex, so I chose epilepsy (of course!) only to be surprised that even in the most established journals I found so little!
It is due tomorrow, but I have a feeling I am going to continue the research post-graduation, so if anyone has anything they care to say, I would be grateful! I completely understand if people are not comfortable here, and I'm not asking for anything graphic. I am basically covering so many subtopics on the impact of epilepsy on sex and romance that does cover hormones and pregnancy, as well as depression, stigmas, religion, varying cultural viewpoints (my friend with TLE told me her divorce was actually a result of her ex's family's interpretation of her condition and his failure to elaborate and clarify with them to the point she was viewed as less than human in their eyes and that took its toll), to side effects of meds, confidence, lack of desire, you name it. But please, feel free to reveal any insight you mmight have. I am so happy that epilepsy is finally getting a little more attention in the mass media, but we have a heck of a long way to go!
Many thanks! RM