I'll try to keep this short...I had brain surgery 2 years ago (had part of my front, left, temporal lobe removed). Prior to my surgery, I had around 70 recorded seizures (I'm guessing I had unrecorded seizures as well, but I don't know). Most of my seizures were peti-mal (sp?). Although, I did have a few grand-mal. I know 70 seizures per yeare are not a lot for some people - I know one girl who had hundreds per DAY (but stopped altogther when she got her vns in December of 2012) - but 70 seizures per year were a lot for me and really changed my life (in a negative way). After surgery, I've had around 30 seizures (over 2 years, so about 15 per year, give or take). My seizure doc says I still qualify for a vns and I'm seriously considering it. HOWEVER, I really need to hear the pros and cons. I've heard nothing but good things from the people I know who have a vns. Here are the pros and cons I've heard thus far:
- May (or will) add shortness of breath
***I'm an avid runner (20 - 30 miles per week), so this could be a very bad thing
- May (or will) make voice change- pretty much a given
- May (or will) cause depression
- May (or will) not have any changes to seizures
- May (or will) cause internal bleeding - which is a very low percentage ( 1- 2%), but still a possibility.
***AM I MISSING ANY CONS???
- May (or will) lesson/stop seizures from happening
- May (or will) change overall "mood" in a good way - lift depression
***AM I MISSING ANY PROS???
Again, I'm only having around 15 seizures per year, so this surgery may not be worth it. However, if (and that's a "big if") it prevents one seizure and raises my mood it almost seems worth it. I know medicine/surgery varies per person. I'm just looking for the overal pros/cons from people who have had VNS implanted. Any and all replies are GREATLY appreciated!!!
Thanks and God bless!