Hi! I am new here and new to epilepsy and really struggling. I'm struggling with the loss of independence, the loss of my life as I knew it, and the fear and anxiety of the unknown. I never had a seizure in my entire life until two weeks ago. I was driving home from college and had an episode. I sort of lost awareness of what I was doing, kept driving and accidentally accelerated to 55 in a 35. I was completely foolish and stupid and didn't go to a doctor or hospital. I was dizzy, had a headache and lingering confusion afterwards. Then this past Monday, I had another episode at school. I don't remember much about it, except I woke up on the floor. According to witnesses I was mumbling, and fidgeting before and then went down into a full out gran-mal. I went to the ER then to a neuro. I had a CT, MRI and EEG. The diagnosis was adult-onset epilepsy, specifically complex-partial, secondarily-generalized seizures originating in my temporal lobe. I've been put on tripletal and am so terrified!


Re: New

Hello, I am new too, my son (15) got diagnosed with JME a couple of months ago, so I am new to this as well.

It takes a little bit to wrap your head around it, so I understand the feelings of fear. The good news is that epilepsy is a treatable condition and with the correct medication and dosage combination, you can carry on with your life. It is no different than having any other condition and with some lifestyle adjustments you can continue on. I cried bitter nights for my son's health, but then I realize he is the same person as he has always been and continues on as normal.. it was actually me being afraid and completly ignorant on the condition. Do not let this stop you or think that life stops here... you are the same person and you can still do pretty much everything. Consult your neurologist about what precautions your should take and observe your state law about driving. It also Best wishes!

Re: New

I just started having seizures this winter too. This new life of the unknown and adjusting is all new. I am in high school so getting a driver's license was put on hold for me. However, my medication has been working to a degree. I also found that I need adaquete amount of sleep each night. Bright lights can be trigger too. I am living a full, normal life and so can you. With the correct support seizures can be managed.
Best of wishes!!

Re: New

I agree. You can still live a full life. My son is just 15 so he is not missing out on driving. Meds are working and we are just counting our blessings and going to sleep on time so he can get at least 8 hours of sleep.

I am happy to hear from you in in question (JME Poll info. Share please) in the 'New" forum. I would like to hear about parents of teens or people in high school and their experiences with epilepsy.

Good luck everyone! Your life is STILL ahead of you.

Re: New

Hi, and welcome! I've had epilepsy since babyhood, but was pretty much in denial about it until the last 8 years or so...I'm 38. It's definitely an adjustment to work through as an adult.

As time goes on, I've had to accept that I can't do everything like I thought I could. Over the last year or so, I stopped driving (luckily I can commute to work on the bus). That's been the biggest adjustment, but I just can't bear the thought of creating an accident that clearly could have been prevented.

I've had to admit to myself that having a seizure is a bigger deal than I've considered it. I used to just experience them and move on with my day, but now I'll leave work when one comes through. I'll stay home if I have one upon waking. I'll let my neurologist know. I can't drive. I can't go hiking by myself. I wear a medical ID bracelet. I constantly suffer from tip-of-the-tongue syndrome.

This isn't trying to scare you...but to let you know life didn't stop despite all of these adjustments. I got married, and we went to Waikiki for our honeymoon (where I did do some drinking, I have to admit). I have a FT career plus a business I own on the side. I've learned to take good notes so the memory isn't so troublesome. My husband is in a band and I run the light show. We're going to see some live music tomorrow. Most of the people I know have no idea that I have epilepsy, it doesn't define who I am.