Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

How exactly do aura's feel

Mon, 05/15/2006 - 11:30
How exactly do aura's feel? Can you have aura's and not have an actual seizure? I think I had some this weekend. I went off into like a "spacy" feeling. Like I was tingling and I couldn't make myself snap out of it for a few seconds. I have had a headache since I has these feelings. I have had E a long time, but I am new to all the terminology and so forth. Thanks.

Comments

Re: How exactly do aura's feel

Submitted by tigershark on Thu, 2012-12-27 - 04:04

I dont mean to break the thread but ive had seizures for 27 years. am on gabapentin 3,200mg,800mg4X/day;keppra750 X4/day and clonazepam 2mg 2x/day. now Im down from 4-5 seizures a week to maybe 1 a month! i have tonic-clonic and myoclonic types. My auras are very weird with many things happening seemingly all at once: first i simply burst into a bad prickly sweat, i feel VERY scared and i can see but i am in a black "dome" with other people(i dont see them) but we are waiting for our seizures to start and a voice/feeling always tells me "lets get it over with" remember this happens in milliseconds. I plead "no take them first" but i am shoved to the front of the line. Ive learned to sit or even drop to the floor/ground cause im sick of the many huge head bumps and scratches i always get. I guess i am unconscious. The same scene but i keep getting shoved for my next turn(seizure). It always tastes as if there is a penny,copper-llike in my mouth and i cant breathe. I remember this"as it happens" Always the same. If for some reason i suddenly flush hot or taste copper i just drop down cause i somehow know whats next. The fear/shame/embarrassment in anticipation is excruciating! I never can be happy for long out of fear. Afterwards im always terrified ive been in some horrible accident and very scared,thirsty and tired. Im always told by someone when its witnessed how blueish/purple i became and pounded my head. Funny, but usually someone tells me how scared THEY were. Usually thats when the medics,cops or firepersons arrive. I guess im out for 4-5 minutes and it takes about 20 minutes or so to start remembring things like my name,day or year,etc. I know this sounds like blow for blowaccount of the whole seizure..its not. Its the whole aura. Except there is usually one or two more in the ambulance or E.R. Ive never gone into this complete detail before cause it usually makes the aura start but i had to get it off my chest. Thanks for letting me ramble. I feel better,Curtis L.

I dont mean to break the thread but ive had seizures for 27 years. am on gabapentin 3,200mg,800mg4X/day;keppra750 X4/day and clonazepam 2mg 2x/day. now Im down from 4-5 seizures a week to maybe 1 a month! i have tonic-clonic and myoclonic types. My auras are very weird with many things happening seemingly all at once: first i simply burst into a bad prickly sweat, i feel VERY scared and i can see but i am in a black "dome" with other people(i dont see them) but we are waiting for our seizures to start and a voice/feeling always tells me "lets get it over with" remember this happens in milliseconds. I plead "no take them first" but i am shoved to the front of the line. Ive learned to sit or even drop to the floor/ground cause im sick of the many huge head bumps and scratches i always get. I guess i am unconscious. The same scene but i keep getting shoved for my next turn(seizure). It always tastes as if there is a penny,copper-llike in my mouth and i cant breathe. I remember this"as it happens" Always the same. If for some reason i suddenly flush hot or taste copper i just drop down cause i somehow know whats next. The fear/shame/embarrassment in anticipation is excruciating! I never can be happy for long out of fear. Afterwards im always terrified ive been in some horrible accident and very scared,thirsty and tired. Im always told by someone when its witnessed how blueish/purple i became and pounded my head. Funny, but usually someone tells me how scared THEY were. Usually thats when the medics,cops or firepersons arrive. I guess im out for 4-5 minutes and it takes about 20 minutes or so to start remembring things like my name,day or year,etc. I know this sounds like blow for blowaccount of the whole seizure..its not. Its the whole aura. Except there is usually one or two more in the ambulance or E.R. Ive never gone into this complete detail before cause it usually makes the aura start but i had to get it off my chest. Thanks for letting me ramble. I feel better,Curtis L.

Re: How exactly do aura's feel

Submitted by leon_heller on Fri, 2013-03-22 - 08:34

I get a feeling of fear or anxiety, it just lasts for a few seconds, followed by a "spaced out" feeling, a feeling of warmth, and weakness - I've collapsed three or four times. Since I've been taking carbamazepine I no longer get the aura and the attacks have been less severe, but they are just as frequent - usually two or three a day over a couple of days every few weeks; I had six yesterday, however.

I've had a brain scan and am seeing a neurologist next week.

Leon Heller

I get a feeling of fear or anxiety, it just lasts for a few seconds, followed by a "spaced out" feeling, a feeling of warmth, and weakness - I've collapsed three or four times. Since I've been taking carbamazepine I no longer get the aura and the attacks have been less severe, but they are just as frequent - usually two or three a day over a couple of days every few weeks; I had six yesterday, however.

I've had a brain scan and am seeing a neurologist next week.

Leon Heller

Re: How exactly do aura's feel

Submitted by jglaugtug on Sun, 2013-03-24 - 07:46
I thought this article was to tell people seizures what exactly an aura feels like. It hasn't!! It dosen't tell me squat. This isn't even an article. All it tells me and probably many other people what other people's auras feel like. All auras are different. This article is titled "How exactly do auras feel". I sorry to say it again. But it dosen't tell me anything I haven't heard before.

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.