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Driving with epilepsy

Tue, 02/19/2013 - 19:48
I could really use some advice and opinions.  Months ago I had a seizure while driving.  Luckily I wasnt hurt, I simply drove into the guide rail and no one else was involved.  I havent had a seizure since and have been feeling great.  Medicine levels are great too.  My question is at what point do I drive again?  I know the requirements legally and I have my license now.  But at what point is it "okay" for me to drive.  I spent 20 years of my life driving with epilepsy and never had a problem.  But now that this has happened to me I just dont know how I go back to driving.  If I go back to driving.  I live in a place where the only way to do anything is to drive.  Its a small town, luckily there is one very limited bus that I am able to take to at least get to the store.  But this has left me unable to work or have any sort of life.  So for anyone who may have had a seizure while driving or even anyone who worries about having one, how to you get to a place where you feel like its ok to get behind the wheel again?

Comments

Re: Driving with epilepsy

Submitted by binkey16 on Fri, 2013-02-22 - 21:02

I am 44 and in June of 2012 had an accident in my new car, I would have owned it for a year in July 2012, I had worked night shift, instead of going home like I should have, I did some errands after work, somehow I managed to drive on top of one of those rope guard rails, someone must have been watching over me because another 20ft was a 60ft drop, I thank god every day that I am here and I didn't hurt anyone else, my friends say ts because I am the only one who can  handle my husband and my daughter.

I am now known as Miss Daisy, thankfully, I was able to change shifts at work, which enables me to get more sleep, which is a major factor  with my seizures. I have changed meds, am getting proper sleep, and doctor says I can drive again in March and I am scared as hell,  but I am going to keep my mothers advice that she gave me at age 16 when I was first diagnosed, "it is an illness, we will get through it, and don't let it stop you" As far as being behind the wheel  again, My nephew said it best the other day, life is a chance Aunt Linda, go with your gut.

I am 44 and in June of 2012 had an accident in my new car, I would have owned it for a year in July 2012, I had worked night shift, instead of going home like I should have, I did some errands after work, somehow I managed to drive on top of one of those rope guard rails, someone must have been watching over me because another 20ft was a 60ft drop, I thank god every day that I am here and I didn't hurt anyone else, my friends say ts because I am the only one who can  handle my husband and my daughter.

I am now known as Miss Daisy, thankfully, I was able to change shifts at work, which enables me to get more sleep, which is a major factor  with my seizures. I have changed meds, am getting proper sleep, and doctor says I can drive again in March and I am scared as hell,  but I am going to keep my mothers advice that she gave me at age 16 when I was first diagnosed, "it is an illness, we will get through it, and don't let it stop you" As far as being behind the wheel  again, My nephew said it best the other day, life is a chance Aunt Linda, go with your gut.

Re: Driving with epilepsy

Submitted by izzy16323 on Fri, 2013-02-22 - 22:32
thanks so much for your post.  today my doctor switched my medicine.  i am getting more sleep, taking better care of myself, am less stressed, and trying to just let whats going to happen happen.  lack of sleep definitely plays a role in my seizures as does stress.  am a little worried about transitioning to a new medicine, i have been on depakote for over 20 years, but am hoping for the best.  i have been dealing with epilepsy since i was 12, i like what your mother told you.

Re: Driving with epilepsy

Submitted by kathyberry04 on Tue, 2013-02-26 - 14:19
I was diagnosed with tonic-clonic epilepsy at age 9, it started with nocturnal seizures. At 16 I had my first day seizure, my Dr at the time never discussed driving restrictions. I am 40 now, I have had several day seizures all reported to my neurologist where I lived. It wasn't until I had major accident in Mississippi while driving, (alone thank God and no one else was injured) that my license was taken away for a year. I easily could have died or killed others, I was driving on a long bridge(or causeway) that had nothing but low concrete barriers between drivers and the water. I believe it was a wake up call for me, to start taking better care of myself. Better sleep patterns, minimal time on the computer and computer games(little to none), since I am photosensitive. When I started working I requested a screen dimmer for the work computer - to protect my sensitivity. I was diagnosed with partial-complex seizures a few years ago. I seem to be evolving, if you will. Most recently, tuesday, the 19th of Feb, 2013, I became confused in two different stores, the last store, I had a prominent starring spell, not sure of the length of time. However, I have now lost my license for 6 months. It is based on the Dr filling a form and me sending it in to DMV. Retroactive to the event, my Dr has made it clear, this isn't about my freedom to drive, it is about the safety of my life on the road as well as everyone else. I could easily hit a small child, an elderly person, anyone, can I live with that? No. I am working on bus, hospital shuttle services, friends, neighbors, husband, husbands' co-workers-wives, Pharmacy delivery, Social Services. Everything is changing - I was never educated as a child or teen or young adult about some of the precautions of Epilepsy. How can you grow up with Grande-Mal epilepsy and never be told the do's and don'ts. Today, we are becoming informed and prepared. Take this serious my friends please. I have also had to be revived once. Listen to your Dr. If the state law says you can drive that is one thing. If your Dr is changing your medicine around seek his or her advise. Regarding when it is safe to drive, each medicine takes time to adjust in a persons system differently. Consult your Dr. they are your go to person for advise. Stay safe!

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