Clobazam

We are going to be starting Clozabam. My 17 yo daughter has been on 7 different AEDs. If they helped to control her seizures, she would develop sign effects that would make taking them impossible. Our biggest one has been reoccurring neutropenia. When you are taking three meds at once, it is hard to pick out  the offending drug at times. Em struggles daily with cognitive issues and other side effects. Having epilepsy is not easy. Our daughter has had a very difficult time coping with the changes that it has brought to her life. Em was diagnosed with epilepsy two years ago. So we are extremely hopefull that Clozabam will help.

Hello. Thanks so much for your story on frisium/clobazam. My wife's Neuro recently talked to us about it so I saw your story as part of my research on the med. I was actually more intrigued with the story about your son as about a year and a half ago, my 35 y/o wife began having seizures out of the blue because of meningitis/encephalitis (docs still aren't sure as ALL tests & re-tests have been normal/negative). We've always had some semblance of hope that this may just go away as mysteriously as it arrived, but our hopesmget dashed with every seizure/new meds. If you don't mind me asking, are your son's neuro's telling you that he'll have. Tis for the rest of his life? My wife's Neuro is reluctant to call it epilepsy but rather a seizure disorder. Thanks again for your story. Cheers, Dom

My son had viral encephalitis 3 1/2 yrs ago we have been on so many different AEDs never fully controlling his seizures. He is currently on Lamictal XR and he seems personality wise the most like himself. We are also on klonopin but he seems to chew everything and do weird things that I can tell messes with his frontal lobe. Was wondering if you are still on the new med and how it is working.