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How Do You Cope?
Sat, 05/12/2012 - 15:01Comments
Re: How Do You Cope?
Submitted by rosanna1980 on Mon, 2012-12-10 - 01:50
Thank you all for your care and support. That is always needed. Unfortunately, about 9 months before my first seizure, I broke my foot. They didn't discover what was causing such pain until 6 weeks later, So, now, it has somehow affected the nerves. I have bad foot pain, and am being tested for peripheral neuropathy. I also hear and see things that aren't there- flashes of light.
From being assaulted and abused throughout my life, I also have severe PTSD and social anxiety. I stay at home. The side effects that make me jerk and talk funny, fall, etc... would be embarassing in public. I have tonic clonic and complex partial seizures. One day, I kept having the complex partial ones for a couple hours in my bed. It wouldn't stop so I called an ambulance. They told me they aren't trained to deal with seizures, and the doctor said I was psychotic and even ordered a psych exam. She told me she never heard of that and I was just dilusional. I almost got sent to the psych ward. Thankfully, she was able to call my neurologist and he confirmed everything I told her. sigh. I love to travel when I can. That helps me get my mind off things. But, now I carry a letter from my neurologist in my purse in case that happens again. :(
Thank you all for your care and support. That is always needed. Unfortunately, about 9 months before my first seizure, I broke my foot. They didn't discover what was causing such pain until 6 weeks later, So, now, it has somehow affected the nerves. I have bad foot pain, and am being tested for peripheral neuropathy. I also hear and see things that aren't there- flashes of light.
From being assaulted and abused throughout my life, I also have severe PTSD and social anxiety. I stay at home. The side effects that make me jerk and talk funny, fall, etc... would be embarassing in public. I have tonic clonic and complex partial seizures. One day, I kept having the complex partial ones for a couple hours in my bed. It wouldn't stop so I called an ambulance. They told me they aren't trained to deal with seizures, and the doctor said I was psychotic and even ordered a psych exam. She told me she never heard of that and I was just dilusional. I almost got sent to the psych ward. Thankfully, she was able to call my neurologist and he confirmed everything I told her. sigh. I love to travel when I can. That helps me get my mind off things. But, now I carry a letter from my neurologist in my purse in case that happens again. :(
Re: How Do You Cope?
Submitted by rosanna1980 on Sat, 2012-12-08 - 17:28
I've tried to attend that meeting a few times. I can't drive and Claudia (the host) hasn't answered my emails or calls. I really want to go, but have no one to take me.