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How Do You Cope?

Sat, 05/12/2012 - 15:01
I was diagnosed 5 months ago and I'm not coping well. My family insults me and refuses to educate themselves on my condition (they assume it's "common sense" and they already know). So, I've found that it helps to cope with pills and alcohol, cutting, journaling, etc... What are some ways you cope when you have no one in person to talk to and are constantly insulted and let down by people who claim to care about you?

Comments

Re: How Do You Cope?

Submitted by hereIgoagainzach on Fri, 2012-06-15 - 16:04
since you are still very new with seizures and just trying to learn about it I'' say something very important, you should really give up your alcohol sorry to say but if you ask anyone with seizures, booze just doesn't work well with epilepsy. a few years ago I drank everyday and found out that I had to choose what I wanted, drinking or seizures,I had to give up everything cold turkey. I will hope you can trust me but alcohol just doesnt go well with us and can have alot to do with it, please ask anyone, I really would hate for you to have to learn on your own and go through many a seizures more. Try to make the best of it with your freinds and family, let them know that you can still have fun and that its not getting the best of you.

Re: How Do You Cope?

Submitted by rosanna1980 on Sat, 2012-06-16 - 22:30
Thank you. And, you're completely right. I know it and often just don't care. My family is a big part of my feeling this way since they insult me, act like they don't care, or talk to me like i'm 5, especially my mother. Something has to give. I'm trying....

Re: How Do You Cope?

Submitted by wd123 on Thu, 2012-11-29 - 21:33

Hi there,

Sorry you are experiencing lack of family support. I would try local epilepsy group (I have been to 2 - so if the first one does not work out try the next - just having someone to chat to is good - I go once a month if I can)

I would try online chats - that will always educate yourself or maybe a nurse educator from epielspy society can help you find other suggestions to - I have found them supportive and caring. I would also try maybe a friend you can trust or therapist who specialises in medical conditions.

At first it was really difficult to be going to hosptials and tests and such and feeling really bad. Can you discuss this with your family perhaps or try other family members ie cousins - grandparents etc.

Hi there,

Sorry you are experiencing lack of family support. I would try local epilepsy group (I have been to 2 - so if the first one does not work out try the next - just having someone to chat to is good - I go once a month if I can)

I would try online chats - that will always educate yourself or maybe a nurse educator from epielspy society can help you find other suggestions to - I have found them supportive and caring. I would also try maybe a friend you can trust or therapist who specialises in medical conditions.

At first it was really difficult to be going to hosptials and tests and such and feeling really bad. Can you discuss this with your family perhaps or try other family members ie cousins - grandparents etc.

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