Nocturnal Seizures / Night seizures

Re: Nocturnal Seizures / Night seizures

Submitted by ckharisma on Fri, 2012-03-16 - 05:09

Hi Danny,  I might be able to lighten your worries. I have a son, 8 yrs, and started to experience night seizures about 3 yrs ago. I`ve been documenting everything, trying to find patterns as to what is causing it. He only started in Oct 2011, on Lorazapam .5 ml that is disolved under his toungue/cheek at start of seizure. This stops the convulsion part. the blank stare stays until the episode is done. Same thing as you... needs to go pee usually between 1230 am and 230 am, that is the time frame where one would occur. I have a question... do you WALK a lot? I say this because I pin pointed with in the last 2 yrs, when ever he would walk more than a city block he would have them frequent, like 2-3 times a week. Then we cut it out, and he only walks every so often. Any other exercise is fine. But if he walks more than 1.6 kms a day, guarenteed one would occur within 12-24 hrs. I don't know what it is.  My son also shows which side of brain it effects. Mainly the right side of brain, but has had night seizures 2 times  a year about with the left side of brain. The way he is effected at night after seizure is, he has dead limbs on one side or other. This is how I know which side it effects. (very important) I've caught a video from start to finish on a mild one.  This was effecting his left side, because his right side was effected. Fast asleep, then wide awake with a twinge in leg/foot. called out for help, and it started. I gave him his lorazapam, but this time it took longer to take effect. I do know for the right side of brain it works VERY quick. Almost as soon as pill is dissolved. I use to wake up myself at night, but it was morning thing. Like 230-530 am. I would wake up to having dead limbs on my left side. Happened all my life every couple months. Though nothing of it. Was always told it was the way I was sleeping. Now Dr's are asking why didn't I get help? Why should I? I know it's not the same as having your limbs "fall asleep" so to say. This was like I just had a stroke! That same feeling you get when you go to dentist and they freeze your mouth.? You know your touching your cheek but you feel nothing on your skin. Weird feeling. The last one I had was right after my son developed symptoms for night seizures.  I could only move one side of my body. The right side.  So I've been trying to make some connection with my son. The tremors started about 3 yrs ago. With jitters in leg(s) he would shake them back and forth on purpose to try to make it go away. He would cry because there was a dulling pain that he couldn't describe. We used a hot water bottle and he said it helped.  I could write a book by now. :)   I almost know more than the Dr.!  We are able to control it for the most part with out meds, but it worries me from the last and first strong seizure he had in July 2011.  There is a pattern. I'll try to come back to see if things get figured out for you. Oh, nothing shows up on his test results either. Nothing showing any signs of seizure even occured. Seizures always leave a mark behind in the brain.  I'll chat with you later. Cindy

Re: Nocturnal Seizures / Night seizures

Submitted by cryder2275 on Wed, 2012-07-25 - 12:48

Hi Everyone,

I am 37 years old and have epilepsy most of my life.  I began with insomnia and frequent auras at 9 yrs. old and nocturnal seizures about 11.  Every single seizure has been at night at I've done everything from sleep walk, even to the point of leaving my home, almost falling down stairs, falling out of my bed, and having grand mals.  You need to know what your triggers are first and foremost.  My triggers are being overly tired and excessive exercise so my exercise routine is limited to a few days a week 20 mins. at a time.  For some reason when I hit 26 I began having more night seizures than ever.  I have have had a long sleep study done and found I was having multiple per night.  Sometimes merely blinking my eyes, some sleep walking and falling.  My seizures are under full control right now; I take 1000 mg. of tegretol XR and 1500 mg. of keppra.  One thing I have found over the years of struggling to live a normal life is that it is best to try for full seizure control.  I do live a pretty normal, independent life, but epilepsy has taken a toll and I became depressed about three yrs. ago when things were bad.  I couldn't even live by myself.  Now, I am in a good place only because I've worked so hard at it.  I am a teacher, live alone, but take my meds religiously and know not to over do things.  I know this can change at any moment though and have come to accept this.   My hope for all of you who fight the daily battle of living with epilepsy find some peace for yourself and you never give up; even when it gets hard.  God bless and good luck:)

Cheryl 

Re: Nocturnal Seizures / Night seizures

Submitted by Funky chicken1953 on Sun, 2012-10-28 - 03:29

I'm 59 years old

I've  only had two Grand Mauls  30 year

I have had and still do have Gelastic Seizures it's where I walk around and laugh, or chuckle.

I wake up and start laughing and saying things like Damn Damn Damn I have walked right around the house.

I'm on Lamictal and Keppra. Without them I used to have them during the day, now I don't walk as far, they don't last as long and they only happen during a sleep or just after waking.

They seem to be the only drugs that I don't get severe side effects.

I've tried so may drugs and test drugs I can't begin to remember, what they were.

I did found out that if I eat late at night or during the day and take a nap I will have continus 

seizures till I take something that will knock me out totally.

Every night I have at least 10. Some worse than others.

But like you it's only at night. Or when I have a nap and wake up.

There are many things that happen not just laughing. Stange feelings wierd deams 

a whole wack of things I could get into some detail, but that would take too much typing.

I wish everyone good luck in dealing with thier seizures

P.S.

Thanks for listening to my situation I hope I find someone like me,

that I could help or just go over some of things they have done. plus some suggestions

for me to do.