Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Memory Loss & Lamictal

Fri, 08/12/2011 - 23:08
Hi everyone. I'm Kat, I've been active on this board for a while but mostly in the Women With Epilepsy forum. I was going to post this in there but I feel like it should be more open to everyone since it's not focusing on women only issues. Since starting Lamictal almost two years ago, I have noticed some fluctuations with my mood as well as my ability to concentrate, that showed mostly as I got up in the dosage. I started at 25mg like most patients and eased my way up to my current 250mg BID (twice a day) dosage. I did the escalation slow as recommended & did not experience any obvious side effects. However, as I've gotten more into my medication routine with it, I have noticed that my moods seem to fluctuate (just a little bit, but still noticeable) and I know that Lamictal is also used to manage bipolar disorder. I am currently in the process of switching doctors so I've been waiting to talk to my new doctor about these issues. I don't have the best relationship with my current doctor & feel as if he doesn't listen so I don't see the point in even bringing it up. In fact, I believe I brought it up to him in the past but to no avail. His answer for everything is either "that's normal but not worrysome" or "lets increase the dose & call me in a week". To run through what I've noticed, the main thing is that I have a hard time handling a day regimen that requires me to multitask. This presents a lot of problems because I have a very busy life with working, managing my home due to my boyfriend being away a lot for his work, taking care of a new puppy practically by myself & being a college student, about to enter a very heavily crowded schedule. I have taken on two jobs in the fall after school starts & even though I have an optimistic look to it, I know from my past that my memory lapses cause a lot of problem. For example, I missed the deadlines for several things involving school that will make my semester hard such as missing the deadline for a grant that would be very helpful & missing the date to order the main campus parking permit & having to get one that's much more difficult to deal with. I've always been a little scatterbrained but it seems much worse lately. Sometimes someone can tell me something & in just fifteen minutes, I forget what they said. This causes a lot of frustration with everyone around me & makes me feel incompetent. I'm not entirely sure it's just the medication but in my heart, I feel like it has something to do with it. Does anyone else that's on Lamictal (I take the generic lamotragine) experience similar problems? If so, how much does it affect your life & how much is your current dosage? I appreciate any feedback. Thanks guys!

Comments

Re: Memory Loss & Lamictal

Submitted by MyssRaven on Wed, 2012-08-29 - 00:43

Kat.

I have to raise my hand and admit to such symptoms. Right now, I'm on about 500 mg of Lamotrigine. 200 mg pills--1 in the morning and 1 1/2 in the afternoon. I'm also on 200 of topamax, 2 doses of 100. I'm also on 20 mg Adderall.

I can't compare myself to who I was before epilepsy. Right now, I have a very good memory for events. If I am engaged in an activity with someone I can really fix that moment into my mind. A conversation in a gallery or a coffee shop will last forever! I might even remember your shirt. However, I still can’t remember the names of some of my co-workers.

I have a few of those, "Why did I come in here," moments.  If I have forgotten what I'm going to say or can't remember the right word, I will make a joke. I laugh and say, "I'm on brain medication," or "I have a brain condition".  I do try to laugh because what else can you do? I don’t remember being this clumsy, before. It seems I just miscalculate the distance and "whack” into things. I have bruises everywhere.

I was first put on Keppra. That was horrible. I was always tired and depressed. When I switched, a positive change was noticed. The Lamictal gives me an energy boost. I take it in the afternoon to avoid the night owl effect. Maybe there is something better for me, but better the devil you know.

 

 

Kat.

I have to raise my hand and admit to such symptoms. Right now, I'm on about 500 mg of Lamotrigine. 200 mg pills--1 in the morning and 1 1/2 in the afternoon. I'm also on 200 of topamax, 2 doses of 100. I'm also on 20 mg Adderall.

I can't compare myself to who I was before epilepsy. Right now, I have a very good memory for events. If I am engaged in an activity with someone I can really fix that moment into my mind. A conversation in a gallery or a coffee shop will last forever! I might even remember your shirt. However, I still can’t remember the names of some of my co-workers.

I have a few of those, "Why did I come in here," moments.  If I have forgotten what I'm going to say or can't remember the right word, I will make a joke. I laugh and say, "I'm on brain medication," or "I have a brain condition".  I do try to laugh because what else can you do? I don’t remember being this clumsy, before. It seems I just miscalculate the distance and "whack” into things. I have bruises everywhere.

I was first put on Keppra. That was horrible. I was always tired and depressed. When I switched, a positive change was noticed. The Lamictal gives me an energy boost. I take it in the afternoon to avoid the night owl effect. Maybe there is something better for me, but better the devil you know.

 

 

Re: Memory Loss & Lamictal

Submitted by woodye85741 on Fri, 2012-10-05 - 23:34

I think that with me I am always thirsty and subsequently the extra fluids do what they  normally do...flush !

Kepps me active and on the "go" though

I think that with me I am always thirsty and subsequently the extra fluids do what they  normally do...flush !

Kepps me active and on the "go" though

Re: Memory Loss & Lamictal

Submitted by vealtiar96 on Thu, 2012-09-13 - 03:10
Yes i can definitely relate.. Ive had Epilepsy since the tender age of 7. I am 23 now. I have only taken 3 different medications for my seizures(Zarontin,Lamictal and Depakote),Lamictal as of the past 7 years.. I honestly have horrible memory.. I have failed tests in college due to the medicine. Even after im up for 4 or 5 hours at a time studying. Someone can tell me something and I totally forget 5 to 10 mins later.. I hate it... I have trouble completing household tasks and chores because i seem to misplace a lot of things.. I misplace things i need everyday like my wallet,keys,shoes,hair products etc. My seizures are so frequent that i cant even getmy license.. that on top of memory loss takes a toll on me.. My doctor would always tell me ''thats normal'' or '' do you want to up the dosage''.. I dont know what I can do. Its getting to the point where i forget names of people places and things..

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.