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Ive never come to terms with my epilepsy
Tue, 07/31/2012 - 18:32Firstly, thanks for taking time to read.
Im 21 and ive been diagnosed since i was 8 years old. You would have thought that i would have been able to come to terms with it by now but i havent.
What im struggling with most is the not being able to drive. People dont understand how much it means to me and its so out of control its scaring me. My epilepsy has pretty much ruled my life, and has sent me into countless depressions, and ive lost a lot of friends over it. Ive been on every type of medication in the UK thats available to epileptics and none of them have worked. Ive been considered for surgery but i had scans and they couldnt determine where in my brain my epilepsy starts so they couldnt operate. This upset me even more.
I have grand mal and absent seizures and ive recently started randomly twitching everywhere all the time and its scaring me. Im on Sodium Valproate (epilim) and Lamotrigine and im taking 10 tablets a day and its still crazy. I dont know what to do :( It upsets me alot. I often get confused and sometimes i know what i want to say but i cant seem to put a sentence together and talk or the word will be there but my mind cant process it to come out which frustrates me.
My physician says that my epilepsy is rare in the sense that most people who are diagnosed so early grow out of it and that they havent been able to achieve full control in 13 years.
Please, if anyone can share any tips on coming to terms and dealing with epilepsy id be so grateful.
Many Thanks
Codie
Comments
Re: Ive never come to terms with my epilepsy
Submitted by ryansdad on Wed, 2012-08-01 - 11:39
Hi Codie,
Have you tried any dietary approaches?
Hi Codie,
Have you tried any dietary approaches?
Re: Ive never come to terms with my epilepsy
Submitted by L435 on Wed, 2012-08-01 - 11:42
Nope,
my physician dont think its diet based anyway, i eat a well balanced diet even though my tablets have made me put on weight so i struggle to keep myself the weight i am. I even take vitamin supplements and its not changing anything :( sometimes i dont even know why i bother with it :(
Nope,
my physician dont think its diet based anyway, i eat a well balanced diet even though my tablets have made me put on weight so i struggle to keep myself the weight i am. I even take vitamin supplements and its not changing anything :( sometimes i dont even know why i bother with it :(
Re: Ive never come to terms with my epilepsy
Submitted by L435 on Wed, 2012-08-01 - 11:45
Im so sorry you nearly lost your life :( thats so awful :(
I know that its just a block in my life, but its something im finding hard to get around or climb over...
I find it hard to tell people and i know that people discriminate in work. Im 21 and ive never had a job. Its not that i dont want one, its that i cant get one because i have no experience because nowhere will take me on plust, i know they discriminate. Im embarassed about my epilepsy and i know that its a part of me, and theres nothhing i can do to change it, it still makes me feel embarassed, especially when i have seizures in public and because i nearly always lose control of my bladder, it makes it even more embarassing.
I also find it hard to tell the men im dating, as i dont want them to think im weird or whatever but then on the other hand, i know if i dont tell them and have a seizure, they'll be angry that i didnt tell them.....its trying to pick the lesser of 2 evils for me :(
I honestly dont know what to do cause they cant find a medication combo for me (im taking 10 tablets a day) and my seizures are getting worse :(
Im so sorry you nearly lost your life :( thats so awful :(
I know that its just a block in my life, but its something im finding hard to get around or climb over...
I find it hard to tell people and i know that people discriminate in work. Im 21 and ive never had a job. Its not that i dont want one, its that i cant get one because i have no experience because nowhere will take me on plust, i know they discriminate. Im embarassed about my epilepsy and i know that its a part of me, and theres nothhing i can do to change it, it still makes me feel embarassed, especially when i have seizures in public and because i nearly always lose control of my bladder, it makes it even more embarassing.
I also find it hard to tell the men im dating, as i dont want them to think im weird or whatever but then on the other hand, i know if i dont tell them and have a seizure, they'll be angry that i didnt tell them.....its trying to pick the lesser of 2 evils for me :(
I honestly dont know what to do cause they cant find a medication combo for me (im taking 10 tablets a day) and my seizures are getting worse :(