Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

How exactly do aura's feel

Mon, 05/15/2006 - 11:30
How exactly do aura's feel? Can you have aura's and not have an actual seizure? I think I had some this weekend. I went off into like a "spacy" feeling. Like I was tingling and I couldn't make myself snap out of it for a few seconds. I have had a headache since I has these feelings. I have had E a long time, but I am new to all the terminology and so forth. Thanks.

Comments

Re: HI

Submitted by HIS BABYGIRL on Tue, 2009-06-16 - 18:45
I HAVE HAD EPILEPSY SNICE I WAS 2 BUT STARTED GETING THESE AURAS FOR ABOUT 6YEARS DOCTORS DIDNT KNOW WHAT IT WAS FROM PEOPLE THOUGHT I WAS LIEING I KNEW I HAD SOME THING WRONG THE WAY I GET ITS JUST SO UGLY I CAN BE SITTING IN A ROOM FULL OF PEOPLE BY MY SELF WERE EVER AND IT DONT MATTER I END UP GETING THEM I GET THAT DEJA VU MY BODY GETS REALLY HOT NO MATTER IF ITS COLD AS HELL OUT SIDE OR NOT I GET THE WEIRDEST FEELING IN MY TUMMY IT SCARES ME IT SUXS WE ALL HAVE TO GO THROUGH THIS BUT ITS KOO TO KNOW THERE SOME ONE ELSE OUT THERE AND YOUR NOT ALONE

Re: HI

Submitted by cryder2275 on Wed, 2012-06-27 - 13:45
I am 37 now, but began having auras at 10.  I didn't actually begin having noctunal seizures until 11.  Auras are very scary if you don't know what is happening.  At 10, I used to either leave a room as a felt it coming on and hide until it was over or I couldn't move at all and others would talk to me, but I was unable to communicate.  I used to call them "funny feelings" b/c I didn't know how to explain it at 10.  But, it is a weird deja-vu feeling or out of body experience.  It's almost as if you are in a separate world from everyone else until it stops.  I also used to feel as though my body from my head down was tingling.  My parents thought there was something psychologically wrong with me until I actually began having seizures.  My auras happended up to 15-20 times daily without a seizure ever happening until 11.  I have had auras over my lifetime since with medication adjustments and such.  It's funny to say, but they do not scare me anymore b/c at least I know what it is and after you live with something so long it doesn't seem so bad; for me at least anyways.  But, I understand that it can be very scary and wish everyone the best who fears them.

Thanks!

Submitted by chipcokedad on Sun, 2009-11-29 - 22:45

Your description of an aura comes closest to what I've been experiencing.  I've had two normal EEG's and never a regular seizure, but these auras happen between 19 days and 2 months apart, last about 10 seconds.  It will come on suddenly and leave me speechless, but focused on a weird memory or more recently, a test to complete, saying a word, speaking a name or answer to a question.  The memory fades quickly and I'm sort of drained and spacey.  I feel weird in my stomach afterwards.

I was diagnoses with mild sleep apnea and so I was hoping that with the cpap machine, my auras would be solved, but alas, they are still occurring.  Tomorrow I'm seeing my primary doctor and hope to be referred to a neurologist or seizure specialist for that angle.  I've heard they can be stress related, so am also thinking about getting into counseling, because I know I tend to repress a lot of stress and don't share the bad stuff of life verbally.

Originally I thought it was a left over from early marijuana use, because the cloud type feeling is similar to these auras.   Thanks for listening and any insights. 

 

Your description of an aura comes closest to what I've been experiencing.  I've had two normal EEG's and never a regular seizure, but these auras happen between 19 days and 2 months apart, last about 10 seconds.  It will come on suddenly and leave me speechless, but focused on a weird memory or more recently, a test to complete, saying a word, speaking a name or answer to a question.  The memory fades quickly and I'm sort of drained and spacey.  I feel weird in my stomach afterwards.

I was diagnoses with mild sleep apnea and so I was hoping that with the cpap machine, my auras would be solved, but alas, they are still occurring.  Tomorrow I'm seeing my primary doctor and hope to be referred to a neurologist or seizure specialist for that angle.  I've heard they can be stress related, so am also thinking about getting into counseling, because I know I tend to repress a lot of stress and don't share the bad stuff of life verbally.

Originally I thought it was a left over from early marijuana use, because the cloud type feeling is similar to these auras.   Thanks for listening and any insights. 

 

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.