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Clobazam

Fri, 12/14/2007 - 21:18
I was wondering if anyone has tried Clobazam.  If so, what are your experiences with the drug?  We are going to start this next week.

Comments

Re: Clobazam

Submitted by tcameron on Mon, 2013-01-07 - 15:35
Its a good drug.  No known side effects.

Re: Clobazam

Submitted by TomP on Fri, 2012-07-20 - 20:06

I've been on Clobazam now for about one month. Having JME, I have now gone through a gamut of meds to control it, after 22 years of success with phenobarb and tegretol - not sure what happened!

 Anyway, a lot has changed since your original post, but I've noticed that clobazam reacts in a similar way to phenobarb. It just is not as thorough a depressive drug as phenobarb. That's good if it works, since the side-effects are lower. It's bad if it doesn't because phenobarb has a broader spectrum of symptom control.

 I'm really quite surprised that both are being prescribed, since their action is so similar. I'm FAR from a doctor, but it just seems a bit odd that both GABA-related drugs would be prescribed. I've tried Divalproex, Keppra, and lamotrigine for JME. Keppra was close but no cigar. The others either made me loopy or aggrevated my seizures.

 Everything in this disorder is personal, though, so nothing I say should guide you one way or another. All i can say is that I've been on both phenobarb and clobazam. It was pleasantly surprising to me that clobazam did not sedate me as much as anticipated, but given my measuring stick (phenobarb) that's easy to be pleasantly surprised!

 I wish you the best in your treatment endeavours.

I've been on Clobazam now for about one month. Having JME, I have now gone through a gamut of meds to control it, after 22 years of success with phenobarb and tegretol - not sure what happened!

 Anyway, a lot has changed since your original post, but I've noticed that clobazam reacts in a similar way to phenobarb. It just is not as thorough a depressive drug as phenobarb. That's good if it works, since the side-effects are lower. It's bad if it doesn't because phenobarb has a broader spectrum of symptom control.

 I'm really quite surprised that both are being prescribed, since their action is so similar. I'm FAR from a doctor, but it just seems a bit odd that both GABA-related drugs would be prescribed. I've tried Divalproex, Keppra, and lamotrigine for JME. Keppra was close but no cigar. The others either made me loopy or aggrevated my seizures.

 Everything in this disorder is personal, though, so nothing I say should guide you one way or another. All i can say is that I've been on both phenobarb and clobazam. It was pleasantly surprising to me that clobazam did not sedate me as much as anticipated, but given my measuring stick (phenobarb) that's easy to be pleasantly surprised!

 I wish you the best in your treatment endeavours.

Re: Clobazam

Submitted by albannon on Fri, 2012-07-27 - 17:09
Our daughter is 41 and has taken virtually every medication available, has had two corpus calosotomies, and insertion of the VNS.  Nothing completely controlled the seizures.  She takes trileptol and keppra.  We just started  clopazam with the other drugs and all of her seizure have disappeared.  She has been taking it for approximately two weeks. She had been having daily seizures of all types. Try it and good luck. It's hard to bellieve why an insurance company does not cover this mediation.

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