The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

School

Thu, 12/15/2011 - 18:13

Here's my story :

 When I was about 18 months old, I started having seizures, and the doctor's never knew why I was having them, and as time went on, I started getting head - aches that usually had me in the nurses office mostly everyday until the Doctor's finally gave me some medicine when they figured  out what I was having.

 They gave me three different types of medicine, but they made my seizures progressively worse and finally one worked, I didn't have seizures often, and life was good.

 But when I grew older, my seizure's came back worse then ever, and it made my life hell because I was taunted and teased throughout Elementary School and Middle School and I was known as the girl who had "Seizures" and everyone made sure to stay away from me because they thought I had some sort of disease or something.

I admit, these past experiences have made me not want to have friends, because I've made friends in the past that just made my situation worse because I made bad choices in friends, or trusting them way too fast because of the fact that someone was actually talking to me.

My parents and I eventually moved to Washington to take care of my grandmother who's too old to be alone by herself, and I went through the rest of my Middle School life without a care because no one knew I had seizures except the teachers, I still got bullied though, but it was for different reasons.

I still have troubles accepting people into my life because of my past experiences of people letting me down when I tell them I have a seizure disorder, a fear of being rejected because of something I can't help, and a fear that I'll choose the wrong people.

My mom say's I should start making friends because she's says I'm isolating myself and that I'm staying in a little box to protect myself, and is that so bad?

Please Reply Back

                               - Archangel

Comments

Re: School

Submitted by gold on Sun, 2012-03-11 - 00:58
hi I completely understand what you have gone thru I had my 1st seizure at 14 and was bullied even before that for other reasons but it got even worse and all I remember is coming home and crying alot cause of the mean things ppl would say or the people that I thought were my friends would say things like ur not going to freak out on us if we hang out or things like that and I went thru relationships were guys would make fun of me for it until I found someone who cared about me and works with me with our son. but I did the same where I cut ppl out of my life and I realized that it was there problem not mine and I couldnt help it and I would tell ppl after I became comfortable with them I realized some people are always going to disappoint you but if they dont like you for who you are its their loss and remember who you are is special and anyone that gets to be friends with you is lucky

Re: School

Submitted by 169085penguins on Sun, 2012-05-06 - 10:26
Hey I've had epilepsy since I was 4 and Im 15 now, but I know how you feel. Teachers used to freak out when I told them and pay me special attention and one PE teacher even refused to let me do any physical activity at all even though Im perfectly physically capable. And my classmates used to laugh at me, said my brain was diseased,etc and really mean things like that, and that I couldn't possibly be smarter than them. But I just worked harder to prove them wrong, show them Im as capable if not more capable than the rest of them. Im the captain of a sports team now, and I got into the best girls school in Singapore based on my results. Point is, don't be discouraged because people look down on you. Just work harder, make friends, and most importantly, earn people's respect. It's easier for people to look past epilepsy then... And I guess over time you'll realize it isn't really a disease, just a condition. And don't let this condition bring you down, or inhibit you from doing what you want. Even now people still give me that "oh i pity you" or "stay away from me" look and I hate it. And I suppose the stereotype is never going to go away, but you can change people's perception about epilepsy by showing them these people can be as capable as them too. Just last friday a classmate of mine told me she was creeped out by epileptic people when they foam from the mouth and start spazzing on the floor. Irony is, she and most of my classmates don't know about my condition, so she didn't know she was speaking to one of those "spazzing on the floor" people. I told her afterwards, and I think she changed her mind about people with epilepsy. Wish you the best:) -Izzy

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.