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Epilepsy and Memory Loss

Sun, 10/08/2006 - 19:36
I'm brand new to this forum. Looking it over, I don't see my major problem & don't have much info about it. I have lost alot of my memory & it supposedly is because of seizures. I have been on Neurontin since I had some blackouts, which I guess are called Absence Seizures. I just blank out & my eyes get glassy. I want to know if the memory loss & "feeling weird" are the result of having Epilepsy, or could they be from meds? I also take Effexor XR for depression. I tried to go off that when I thought maybe I'd been mistakenly diagosed with depression before they realized I have Epilepsy. That resulted in some very bad mental & emotional health problems. I'm taking both now, & the memory loss & (sometimes)weird feelings persist. Anyone out there know anything about these issues?

Comments

Re: Epilepsy and Memory Loss

Submitted by arsen77 on Fri, 2012-04-13 - 00:04
I had my first grand mal seizure when I was 16 and was out of it for two days in the hospital. I woke up not knowing what was going on, and completely freaking out. Afterwards, I realized that I had hardly any childhood memories left. My grades somewhat slipped in school. I somewhat get flashes of memories here and there over time. I guess you could say somewhat "slowly building them back up". I've had people somewhat mock me for this but what you need to remember is #1: It's not your fault,#2: It's not an unusual occurrence and #3: Literally everybody that has epilepsy generally has some sort of memory loss issues. My advice is read through some more stories of people on this website and get yourself a little more acquainted with what all is going on and what others have experienced. Your not alone in this and this website has more than helped me.

Re: Epilepsy and Memory Loss

Submitted by tcameron on Sat, 2012-04-14 - 01:41

I had a tough time in J.C.  It took 10 years to get an AA degree in General Ed.  I have a learning disability, compounded by the Dilantin I take.  (I'm also taking 3 other AEDs.) My memory is so bad I can't finsih college.  I have no idea what type of job I could ever get in the outside world with no memory of my past.  I dont' even remember the Rolling Stones concert I went to about 30 years ago.  Okay, that was a long time ago, but come on...This was my favorite rock group at the time. 

I am afraid my family will decide to put me in a nursing home so they won't need to worry about me.  Out of sight, out of mind.  I'm certain I'll get early dementia because I was too stupid and vain to wear a helmet until 2 years ago.  I'd fall on concrete, hit my head, break my nose, or whatever.  I'd usually leave a pile of blood wherever I was, but I refused to get that helmet.  Now, it's probably not going to make much of a difference.  I don't remember a lot of things anymore.  

My learning disability was diagnosed after my neuro psychologic test.  It's pretty bad, and I feel totally stupid.  I have more than 3 seizures/month (what's required to be on disability) and can't seem to get down to only one month without a seizure.  I'd like to know what the outside world feels like again.  Seriously, I have no idea what it is like to work in an office or do anything that could help me with my career....as what?  I can't even figure out what to do, since everything seems to take a B.S. degree to get anything anymore.  

Have any of you felt like you're going to lose your independence because a family member might put you away in a nursing home?  I remember my Grandma!  Almost no one visited her!  It broke my heart...I wanted to visit her more often, but couldn't because of this stupid epilepsy.  It's going to happen to me.  I'd rather die young than live like that.  I've seen too many nursing homes to know that this is common for people with dementia...most often Alzheimer's.  It's frightening!  At least I'm only losing long-term memory.  I've got to give my medical power of attorney to someone I can trust...and my family isn't it!  

Does anyone else not trust their families because of memory loss?  I need to turn over my medical power-of attorney, so no one can do that to me.  I've also peed in bed.  The first time, my boyfriend was furious with me!  I had such a horrible headache, I couldn't tell what was happening.  I felt that bad for over 24 hours, then I felt better.  He understands now, but of course, it's an imposition, which is why I wear the pads.  I've only needed it 6 times; but that's 6 too many!  I also make sure to try to pee as often as possible, in case I have a seizure during the day.  It happens, part of having a seizure with a full bladder.  It sure helps to wake up at 2:00 AM, get to the bathroom, and slip back into bed.  No problem getting back to sleep, 'cause I've made it a habit.  

 

 

I had a tough time in J.C.  It took 10 years to get an AA degree in General Ed.  I have a learning disability, compounded by the Dilantin I take.  (I'm also taking 3 other AEDs.) My memory is so bad I can't finsih college.  I have no idea what type of job I could ever get in the outside world with no memory of my past.  I dont' even remember the Rolling Stones concert I went to about 30 years ago.  Okay, that was a long time ago, but come on...This was my favorite rock group at the time. 

I am afraid my family will decide to put me in a nursing home so they won't need to worry about me.  Out of sight, out of mind.  I'm certain I'll get early dementia because I was too stupid and vain to wear a helmet until 2 years ago.  I'd fall on concrete, hit my head, break my nose, or whatever.  I'd usually leave a pile of blood wherever I was, but I refused to get that helmet.  Now, it's probably not going to make much of a difference.  I don't remember a lot of things anymore.  

My learning disability was diagnosed after my neuro psychologic test.  It's pretty bad, and I feel totally stupid.  I have more than 3 seizures/month (what's required to be on disability) and can't seem to get down to only one month without a seizure.  I'd like to know what the outside world feels like again.  Seriously, I have no idea what it is like to work in an office or do anything that could help me with my career....as what?  I can't even figure out what to do, since everything seems to take a B.S. degree to get anything anymore.  

Have any of you felt like you're going to lose your independence because a family member might put you away in a nursing home?  I remember my Grandma!  Almost no one visited her!  It broke my heart...I wanted to visit her more often, but couldn't because of this stupid epilepsy.  It's going to happen to me.  I'd rather die young than live like that.  I've seen too many nursing homes to know that this is common for people with dementia...most often Alzheimer's.  It's frightening!  At least I'm only losing long-term memory.  I've got to give my medical power of attorney to someone I can trust...and my family isn't it!  

Does anyone else not trust their families because of memory loss?  I need to turn over my medical power-of attorney, so no one can do that to me.  I've also peed in bed.  The first time, my boyfriend was furious with me!  I had such a horrible headache, I couldn't tell what was happening.  I felt that bad for over 24 hours, then I felt better.  He understands now, but of course, it's an imposition, which is why I wear the pads.  I've only needed it 6 times; but that's 6 too many!  I also make sure to try to pee as often as possible, in case I have a seizure during the day.  It happens, part of having a seizure with a full bladder.  It sure helps to wake up at 2:00 AM, get to the bathroom, and slip back into bed.  No problem getting back to sleep, 'cause I've made it a habit.  

 

 

Re: Epilepsy and Memory Loss

Submitted by AshleyOH91 on Mon, 2012-04-30 - 07:06
I am new to the forum, but I was reading a lot of the posts. I am 20 years old have been having seizures for 7 years now. But abotu 3 weeks ago I had 3 seizures in a span of 24 hours and the last one I had was really bad. When I came out of it I did not know where I was or who I was with. I lost the past 2 years of my life pretty much. It is slowly coming back but my first 2 years in college I do not remember and ever since I have had trouble remembering little things. I have also not been able to get on a proper sleep schedule. I end up laying in my bed wide awake for hours on end just not able to fall asleep. I have a hard time retaining stuff now, like peoples names which I was really good at remembering names of people even if i just met them. Because of this I recently had to sign a power of attourney to my father. I am a little hesitant on it because I no longer have control of everything and I am a person who wants to be in control of my surroundings. I have been pulled out of school for the rest of the semester and my life is pretty much on hold...

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