Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
How long do YOU feel strange after a seizure?
Tue, 03/27/2012 - 23:32Comments
Re: How long do YOU feel strange after a seizure?
Submitted by endinsight on Tue, 2012-04-24 - 08:41
Re: How long do YOU feel strange after a seizure?
Submitted by tcameron on Tue, 2012-04-24 - 15:38
Reminds me when I was diagnosed. I was given an AED Rx. It didn't say, 'Take for xx weeks.' "How long do I take this?" "You don't stop." "Why do I keep taking this? I was fine yesterday. I'm just like everyone else.' "You weren't fine!" Yes, food additives are poisoning us. Look in your kitchen: Almost every food has additives! Our AEDs are also poisoning us and confusing our brains. (I heard, not from a med. pro., if you fed a child who never had a seizure AEDs for several years then suddenly stopped; she'd have a seizure!) Medical science has come a long way, but there is a lot more to be learned. I'm only a patient. Does anyone really know? The National Epilepsy Library might have more accurate info: 1-800-332-4050 x 2112, or nel@efa.org.
Reminds me when I was diagnosed. I was given an AED Rx. It didn't say, 'Take for xx weeks.' "How long do I take this?" "You don't stop." "Why do I keep taking this? I was fine yesterday. I'm just like everyone else.' "You weren't fine!" Yes, food additives are poisoning us. Look in your kitchen: Almost every food has additives! Our AEDs are also poisoning us and confusing our brains. (I heard, not from a med. pro., if you fed a child who never had a seizure AEDs for several years then suddenly stopped; she'd have a seizure!) Medical science has come a long way, but there is a lot more to be learned. I'm only a patient. Does anyone really know? The National Epilepsy Library might have more accurate info: 1-800-332-4050 x 2112, or nel@efa.org.
Re: How long do YOU feel strange after a seizure?
Submitted by tcameron on Tue, 2012-04-24 - 00:11
I didn't know that tegretol causes cancer after long-term use. I wouldn't be the least bit surprised if a lot of different AEDs cause cancer. Did you hear what kind of cancer? I've been taking AEDs ever since 1976. I've tried almost all of them. I usually always take 3 or 4 different AEDs together, because my seizures are refractory, and I fall down.
Here's the interesting thing: I was just diagnosed with Stage 1 Kidney Cancer! Seriously, I wouldn't be surprised if my AEDs caused it. Fortunately, I had an xray, due to a fall on my back (seizure). While examining my spine for any hairline cracks, my epileptologist noticed a small calcification on my kidney. He referred me to the cancer ctr. It WAS malignant. Of course, I had it removed ASAP. I'm fine, and extremely fortunate that it was caught in the 1st stage. (According to my oncologist, the only way it's ever caught in Stage 1 is by accident.)
I didn't know that tegretol causes cancer after long-term use. I wouldn't be the least bit surprised if a lot of different AEDs cause cancer. Did you hear what kind of cancer? I've been taking AEDs ever since 1976. I've tried almost all of them. I usually always take 3 or 4 different AEDs together, because my seizures are refractory, and I fall down.
Here's the interesting thing: I was just diagnosed with Stage 1 Kidney Cancer! Seriously, I wouldn't be surprised if my AEDs caused it. Fortunately, I had an xray, due to a fall on my back (seizure). While examining my spine for any hairline cracks, my epileptologist noticed a small calcification on my kidney. He referred me to the cancer ctr. It WAS malignant. Of course, I had it removed ASAP. I'm fine, and extremely fortunate that it was caught in the 1st stage. (According to my oncologist, the only way it's ever caught in Stage 1 is by accident.)