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How long do YOU feel strange after a seizure?

Tue, 03/27/2012 - 23:32
I figured I would share my situation and how I am feeling with people who hopefully can relate, because I am a bit scared currently. I had my first seizure some 8 years ago and have been dealing with them ever since. I always have felt slightly strange after a seizure maybe 3 or 4 days after as though my head has released all kinds of memories and I am just sifting through them all and regaining my present self. I went seizure free for two years and thought maybe I had tamed this beast. Of course epilepsy wont go away that easily and I recently had two seizures over the course of 3 weeks. It has been about a week since the last one, and that feeling of released memories and vibes from the past has become overwhelming and I cannot seem to get back to feeling normal. I am very anxious, bouts of depression have been frequent, and nothing seems to make me feel normal, and I am getting scared that I never will feel so again. I am not sure what has happened, I just want to share this with you all and hope that somebody else can relate and let me know they have gone through this and come out ok in the end. Or maybe it is a personal demon I must combat. The question is posed for everybody, how long does it take you personally to start feeling normal again? Thank you.

Comments

Re: How long do YOU feel strange after a seizure?

Submitted by tcameron on Sun, 2012-04-22 - 20:16

It's natural to find food unappealing, even our favorite treats,  for a couple days after a seizure. Of course, we need our nutrition, so it's imperative that we keep a 6-pack of Boost or Ensure in the cupboard at all times.  (Of course, we don't need all 6 at once, but we need to keep plenty so it's there.)  Even if we need to force it down,  do it.  Also, it's vital to keep ourselves well hydrated, so keep a large drinking size water bottle with you, and refill it several times each day.  The reason for the bottle is so you won't spill it if you have another seizure.

Is your neurologist aware that your pills have been making you feel unusual for the past 2 years?  She needs to be aware of it.  There is a possibility that a simple Rx change can be all that's needed.  You've only had seizures for a couple years, so there are many more AEDs to try.  

Take care of yourself!

It's natural to find food unappealing, even our favorite treats,  for a couple days after a seizure. Of course, we need our nutrition, so it's imperative that we keep a 6-pack of Boost or Ensure in the cupboard at all times.  (Of course, we don't need all 6 at once, but we need to keep plenty so it's there.)  Even if we need to force it down,  do it.  Also, it's vital to keep ourselves well hydrated, so keep a large drinking size water bottle with you, and refill it several times each day.  The reason for the bottle is so you won't spill it if you have another seizure.

Is your neurologist aware that your pills have been making you feel unusual for the past 2 years?  She needs to be aware of it.  There is a possibility that a simple Rx change can be all that's needed.  You've only had seizures for a couple years, so there are many more AEDs to try.  

Take care of yourself!

Re: How long do YOU feel strange after a seizure?

Submitted by endinsight on Sun, 2012-04-22 - 22:15
  Sorry but I would have a 6 pack of beer close to me before I would have 1 can of Boost or Ensure in my hand. Boost and Ensure have Carrageenan in them the last I looked at the ingredients which can cause me to have a Grand Mal / Tonic Clonic. Maybe you just saying to keep Boost and Ensure close by to everyone else should also make others aware how they feel after they take it for a replacement meal. I just do not eat for a day or 2 maybe if my mouth & tounge is soar from bitting it. I would maybe drink water with lemon juice and suck a little on a lemon to heal my mouth quicker. If everyone would take seriously and look for a pattern of a food related cause to their seizures, I would almost be shocked if 2 out of 3 would see and realize a food additive, chemical or preservatitive might be the root cause to their problem as is mine. But wait,,, Who is to say that maybe some medicines that are to prevent the seizures we all have, might be helping these food additives & etc.... create our seizures which if MSG is as safe as the FDA claims it is, then maybe our medicines are not safe to have when we get these food additives like MSG in our blood stream ?   I have so many questions that I know there are answers for, as this Thursday will make it 17 months seizure free as I see my doctor on that day also. I don't want to repeat the same old song over & over, but when reality & facts equals truth and evidence, and doctors ignore it, who is helping who ?  So I say have good fruits, vegetables, eggs, bread/toast and NO processed foods that you are not 100% sure might be the problem of your seizure condition. I'll not apologize for wanting to see everyone to be 17 or more months seizure free like I have been as I only give that credit to the one upstairs beyond where I plan to be when that day shall come.

Re: How long do YOU feel strange after a seizure?

Submitted by tcameron on Mon, 2012-04-23 - 18:01
Carrageenan can cause Tonic Clonic seizures?  I learned something today.  I'm also going to mention this to my epileptologist to find out if he thinks it's safe.  Thanks for the info. 

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