Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
How long do YOU feel strange after a seizure?
Tue, 03/27/2012 - 23:32Comments
Re: How long do YOU feel strange after a seizure?
Submitted by fivelove on Sat, 2012-04-14 - 18:44
Whenever a seizures coming I get an aura, stomache churning, a ticking between the eyebrows, hearing starts to become absent and as soon as i get the signs which are always on a morning time and usually believe it or not on a monday sometimes yrs apart I either stay in bed or get into the recovery position if i'm downstairs, this has minimised my injuries as ive had many. Afterwards my body is so heavy and my head feels cold inside sometimes i cry mostly because i'm mad at feeling so bad and here i go again laid up because i'm too tired to move, I think why cant i just grow out of them ? I try to eat or do something to get back to 'normality' but to no avail. The nxt day i'm more energetic but then if i cant remember the slightest thing i think has the seizure done this and start to panick for my future all i know is at the time i feel like ive been hit with a train and i dont like it.
Whenever a seizures coming I get an aura, stomache churning, a ticking between the eyebrows, hearing starts to become absent and as soon as i get the signs which are always on a morning time and usually believe it or not on a monday sometimes yrs apart I either stay in bed or get into the recovery position if i'm downstairs, this has minimised my injuries as ive had many. Afterwards my body is so heavy and my head feels cold inside sometimes i cry mostly because i'm mad at feeling so bad and here i go again laid up because i'm too tired to move, I think why cant i just grow out of them ? I try to eat or do something to get back to 'normality' but to no avail. The nxt day i'm more energetic but then if i cant remember the slightest thing i think has the seizure done this and start to panick for my future all i know is at the time i feel like ive been hit with a train and i dont like it.
Re: How long do YOU feel strange after a seizure?
Submitted by tcameron on Sun, 2012-04-15 - 14:17
Not myself, migraines and in bed were at least 24 hours...until I started Vimpat. Each person is unique, we all experience a 'different' type of difference. However, the Vimpat helps me a lot. (Still won't control the seizures, but I got my regular life back.) For me, it stopped most of the headaches, and I'm able to feel myself within a couple hours. Migraines are completely gone; once in a while I'll have a small headache, but don't bother to take an Advil because I know it will be gone in a couple hours.
Some people can't tolerate Vimpat. Starting new AEDs is frightening, since they've caused severe allergic reactions to some of us. However, it might be the "magic pill". It's already been discovered for several thousands of others. I just started Onfi, but developed a horrible allergic rash! Still, I won't find my 'magic pill' unless I keep trying. Good luck!
Not myself, migraines and in bed were at least 24 hours...until I started Vimpat. Each person is unique, we all experience a 'different' type of difference. However, the Vimpat helps me a lot. (Still won't control the seizures, but I got my regular life back.) For me, it stopped most of the headaches, and I'm able to feel myself within a couple hours. Migraines are completely gone; once in a while I'll have a small headache, but don't bother to take an Advil because I know it will be gone in a couple hours.
Some people can't tolerate Vimpat. Starting new AEDs is frightening, since they've caused severe allergic reactions to some of us. However, it might be the "magic pill". It's already been discovered for several thousands of others. I just started Onfi, but developed a horrible allergic rash! Still, I won't find my 'magic pill' unless I keep trying. Good luck!
Re: How long do YOU feel strange after a seizure?
Submitted by MyssRaven on Fri, 2012-04-13 - 01:11
After my seizures, the really bad ones, I'm really confused for at least a half an hour, unaware that I've had a seizure. At first unable to speak, then once I can, I can't seem to form a complete sentence. It usually takes an hour and a half before I can speak coherrently enough to convince people I know what's going on. Then I lay down and sleep for a few hours. The next day I'm still tired and irritable. Most of the time I've bitten my tongue or lip, or both, so hard it takes a long time for them to heal. Last time I smacked my hardwood floor, hit my head, elbows, hips, knees, bursies everywhere. My head will have several spots where I have to be careful brushing, drying, even washing my hair. I'll usually have a black eye. I can cover it with make up but not entirely. If the subject comes up I try to make jokes but that can only go so far. I'll get really depressed with the "why me" attitude. I feel it everytime I take a step, or brush my hair or look in the mirror. I don't know if the depression is a result of the seizure or just human nature. I know this doesn't seem to compare to the types of recovery being discussed, but this is mine.
After my seizures, the really bad ones, I'm really confused for at least a half an hour, unaware that I've had a seizure. At first unable to speak, then once I can, I can't seem to form a complete sentence. It usually takes an hour and a half before I can speak coherrently enough to convince people I know what's going on. Then I lay down and sleep for a few hours. The next day I'm still tired and irritable. Most of the time I've bitten my tongue or lip, or both, so hard it takes a long time for them to heal. Last time I smacked my hardwood floor, hit my head, elbows, hips, knees, bursies everywhere. My head will have several spots where I have to be careful brushing, drying, even washing my hair. I'll usually have a black eye. I can cover it with make up but not entirely. If the subject comes up I try to make jokes but that can only go so far. I'll get really depressed with the "why me" attitude. I feel it everytime I take a step, or brush my hair or look in the mirror. I don't know if the depression is a result of the seizure or just human nature. I know this doesn't seem to compare to the types of recovery being discussed, but this is mine.