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Bad day?
Sat, 10/23/2010 - 14:23Topic: Living With Epilepsy - Youth
Hello, I wanted to make this story because I'm scared, again. I woke up at 8:29, and by almost 12:00, I have had 11 seizures. Usually on a good day I have 15 seizures. This seems like a lot in a short period of time, 3 hrs. and 30 minutes almost. Can anybody provide advice and support?
Re: Bad day?
Submitted by Writing Tumbler on Thu, 2012-04-12 - 15:09
This discussion has been interesting to read. I liked the suggestion to get a horse. I live in southwestern Ontario, in Mennonite territory. I've joked a few times that I just need to move out to the country, learn how to look after a few horses, and then drive horse and buggy :)
But since that's not going to happen (don't like being on things with their own brain), I get around myself either by bike, on foot, or by bus. (I am married to a driving husband, so he picks up the slack where it's needed.)
I've had lots of seizures in a day. Maybe because I've had them my entire life, they don't scare me. But I also trust them 100% to not change (and they never have except during pregnancy, when they improved).
I just read an article showing proof that frequent, non-injurious seizures, actually promotes brain healing. Not sure why I still have seizures then :) but here they are. One night recently, I was dead tired while attempting to have a conversation with my husband and had, I think, around 15 in 30 minutes. The solution? Go to bed.
My guess as to why you had so many is because your brain hadn't fully "woken up." I know it's been over a year since you've written, and maybe you've found a medication combination to control everything. But in case you haven't, sleep is a MAJOR factor in brain health and, therefore, seizure frequency.
Anyways, I really sure get back to work. Hope you've been able to find answers while on this journey.
Writing Tumbler
This discussion has been interesting to read. I liked the suggestion to get a horse. I live in southwestern Ontario, in Mennonite territory. I've joked a few times that I just need to move out to the country, learn how to look after a few horses, and then drive horse and buggy :)
But since that's not going to happen (don't like being on things with their own brain), I get around myself either by bike, on foot, or by bus. (I am married to a driving husband, so he picks up the slack where it's needed.)
I've had lots of seizures in a day. Maybe because I've had them my entire life, they don't scare me. But I also trust them 100% to not change (and they never have except during pregnancy, when they improved).
I just read an article showing proof that frequent, non-injurious seizures, actually promotes brain healing. Not sure why I still have seizures then :) but here they are. One night recently, I was dead tired while attempting to have a conversation with my husband and had, I think, around 15 in 30 minutes. The solution? Go to bed.
My guess as to why you had so many is because your brain hadn't fully "woken up." I know it's been over a year since you've written, and maybe you've found a medication combination to control everything. But in case you haven't, sleep is a MAJOR factor in brain health and, therefore, seizure frequency.
Anyways, I really sure get back to work. Hope you've been able to find answers while on this journey.
Writing Tumbler