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Grow out of seizures???

Sun, 05/21/2006 - 21:52
Hey, have you other parents out there heard that your child could grow out of their seizure disorder? My Zakry has idiopathic epi, so does that mean that he should be able to grow out of it? We are running one more metabolic test, but that's just to be safe (we thought he had MSUD). Has anyone else heard this? Has anyone else had an experience where someone "grew out of it?" Just looking for the positive!

Comments

Re: Grow out of seizures???

Submitted by Amydav on Thu, 2012-03-29 - 12:36
Hi, My daughter, who is six, was just diagnosed with absence seizures. I brleive she has been having them for atleast two years though. They have gone undetected because she just appears to be day dreaming when she has a "spell". It lasts for about 5-10 seconds. She experiences them sporadically throughout the day, but doesn't even know she has had one. I haven't started her on meds yet. I'm just curious, everyone seems to have a different story, what were your seizures like? Which med were you on and did you have any adverse side effects? Amy Davenport

Re: Grow out of seizures???

Submitted by tcameron on Thu, 2012-03-29 - 18:05

Amy, 

Absence seizures are simple partial.  They usually aren't detected because they're so short, & look like daydreaming.  It's imperative she gets her AEDs for her safety.  It's common to have amnesia after our seizures.  She might outgrow them, but it's possible to have S.P., then convulsive, C.P.  Mine weren't diagnosed until my 1st C.P. @ 16.  Started on Phenobarbital.  I felt suicidal the 1st week.  Switched to Dilantin; no side effects.  Been on it, & several others, ever since. 

Everyone's story is different because every brain is different.  There are many AEDs to choose from; all can cause serious side effects.  If she doesn't respond well to one, put her on another.  The videos on this website can give you more detailed info.

Amy, 

Absence seizures are simple partial.  They usually aren't detected because they're so short, & look like daydreaming.  It's imperative she gets her AEDs for her safety.  It's common to have amnesia after our seizures.  She might outgrow them, but it's possible to have S.P., then convulsive, C.P.  Mine weren't diagnosed until my 1st C.P. @ 16.  Started on Phenobarbital.  I felt suicidal the 1st week.  Switched to Dilantin; no side effects.  Been on it, & several others, ever since. 

Everyone's story is different because every brain is different.  There are many AEDs to choose from; all can cause serious side effects.  If she doesn't respond well to one, put her on another.  The videos on this website can give you more detailed info.

Re: Grow out of seizures???

Submitted by mperez on Sat, 2012-07-14 - 15:49
Hi Amy, my daughter has the same type of seizures.  She was diagnosed at 8yrs of age thanks to her 3rd grade teacher that noticed it.  It does seem like she is day-dreaming.  She is 14 now and she still gets them, however the medication helps with how often a day she gets them.  I'm hoping she grows out of them.  She is currently on Lamictal and Ethosuximide.  Her doctor is still trying to find the right medication to keep all her seizures at bay.  As for side effects, they say mood swings and weight gain, but my daugther has not shown signs of either.  She's even tempered and is not at all overweight.  Not sure if this had anything to do with the medication, but she started mentruating at 10yrs old.  Good luck to you and your daughter.

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