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Hysterectomy reduce seizures??

Thu, 03/18/2010 - 12:36

Good morning ladies...

I like, many of you, have catamenial epilepsy.  My seizures are completely controlled except for 1-7 days before I start my period.  I have been on several different meds and several different combonations of meds for several years, but nothing works around the time of menstration.

I am 33 and a handfull of doctors have said because of the epilepsy, my baby making days are over.  That is perfectly fine w/ me.  Since I am no longer contemplating children there is no reason for me to continue to ovulate/ menstrate... especially since the menstration is the reason for the seizures I continue to have.

If I were to have a hysterectomy and didn't have to worry about menstration anymore,  would there be a good chance that my seizure amount would reduce/ be eliminated? 

If anyone has had any experiences or have comments/ suggestions/ ideas .... I would love to read them.

 

Many thanks to all!

Shakey Mom=> Omaha, NE

Comments

Re: Hysterectomy reduce seizures??

Submitted by carped on Wed, 2011-12-28 - 09:14

Diana73,

I had a complete hysterectomy in May 2011 for my catamenial seizures.  I suffer from simple partials that affect my speech and spatial relationships.  This occures when I would ovulate and again when I would get my period.  I thought the surgery would "cure" me.  Unfortunately, my pattern has reemerged.  The intensity of my seizures is about half of what it was, but it is still happening in a very predicatable pattern of 12 days of normalcy and then 4 days of difficulties.  I am so frustrated!  My problems began with perimenopause and have been going on for four years now.  I don't know what to do next....  Can you please give us an update on your condition?  Hopefully it is better than mine and can give me some inspiration!  I am trying hard to give the reduction in my symptoms a lot of positive energy and not dwell on the fact that it is still happening.

Sincerely,

Carped

Diana73,

I had a complete hysterectomy in May 2011 for my catamenial seizures.  I suffer from simple partials that affect my speech and spatial relationships.  This occures when I would ovulate and again when I would get my period.  I thought the surgery would "cure" me.  Unfortunately, my pattern has reemerged.  The intensity of my seizures is about half of what it was, but it is still happening in a very predicatable pattern of 12 days of normalcy and then 4 days of difficulties.  I am so frustrated!  My problems began with perimenopause and have been going on for four years now.  I don't know what to do next....  Can you please give us an update on your condition?  Hopefully it is better than mine and can give me some inspiration!  I am trying hard to give the reduction in my symptoms a lot of positive energy and not dwell on the fact that it is still happening.

Sincerely,

Carped

Re: Hysterectomy reduce seizures??

Submitted by diana73 on Tue, 2012-03-27 - 15:21
Carped- I have a few questions for u...what kind of hysterectomy did u have (Partial, whole, what is left)?, how soon after the hysterectomy did u go back to Seizing? Did it ever stop? Are u on any HRT? What AED's are u currently on? And Last how old are u now? Sorry for the personal questions but I needtl to know so I can best assess what's going on w your situation. With my experience together hopefully we can figure this out.

Re: Hysterectomy reduce seizures??

Submitted by diana73 on Tue, 2012-03-20 - 04:17
Just wanted to update you all..my hysterectomy was the best thing ever coulve done for my epilepsy. It took about 6 months to recover hormonally but my seizures disappeared after about 2-3 months. I had one ovary and my uterus removed. I am no longer on AEDs. I was only able to get the surgery by crying "pain" in my pelvic area. I was desperate for a life of quality. I must state this is what worked for me. Not everyone is alike but I had notice more seizure activity around my period. I was in tune w my body and just knew It was hormone (estrogen) related. By the way if anyone on here does get it done know this, DO NOT CONSSUME ANY ALCOHOL FOR AT LEAST A YEAR TO THREE AFTER SURGERY! You're seizures WILL come back w a vengeance. Good luck to you woman suffering w this illness.

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