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Epilepsy and Relationships

Fri, 03/02/2012 - 02:31
No matter how hard I try I can't help but to feel distant. Somehow I always end up being disconnected. I've Made personal decisions as a person that really destroyed my reputation. There are few people who have a frustrated love for me. I get into moods where I just don't want to talk or everything an everyone just seem distant. My relationship with my family is rocky, one day it's blue skies the next it's a scene out of twister. I'm far more mature now then I used to be; I wouldn't talk about my epilepsy out of embarrassment and ignorance. I'm still very embarrassed but I will talk about it if asked. What I want to know is: How does epilepsy effect the relationships in your life? Do you get angry very easily ? Are your moods effected by epilepsy? Are you embarrassed to be the way you are?

Comments

Re: Epilepsy and Relationships

Submitted by mwolf on Sat, 2012-03-03 - 15:41
I think the medicine really affects my mood. For instance Topamax made me depressed and skinnier. I thought I was going insane and then they took me off of Topamax and I felt better and realized the drug sucked. I'm on keppra now and I blame all of my anger issues on "keppra rages". Keppra is known to make people irritable. I'm embarrassed about it. I think I had trouble with my social life before and then epilepsy just destroyed it completely, actually. I don't miss people very much because they were never very nice to me.

Re: Epilepsy and Relationships

Submitted by Aripierce on Sat, 2012-03-03 - 16:34

how does epilepsy effect the relationships in your life?

it greatly effects them. Like you, I find myself wanting to just cut myself off from everyone and everything. I feel more comfortable and safe inside my own thoughts. It's not like that all of the time, sometimes it's happiness sunshine and roses...then something small or nothing changes it and it's rain and thunderstorms and another week of seclusion for me. I really related with what you said about peoples love for you "frustrated love" you said it perfectly!

 Do you get angry very easily ? Are your moods effected by epilepsy?

Yes and definately! I think my epilepsy affects my mood and also that my moods affect my epilepsy. I feel like it all goes hand in hand. I have a very rocky romantic relationship that I attribute most of our problems with my moods and seizures. (have you looked at all into bipolar disorder? I know this is touchy but E and bipolar are closely related.)

Are you embarrassed to be the way you are?

Yes I am. theres not much else to say about that :(

~*Ari*~

how does epilepsy effect the relationships in your life?

it greatly effects them. Like you, I find myself wanting to just cut myself off from everyone and everything. I feel more comfortable and safe inside my own thoughts. It's not like that all of the time, sometimes it's happiness sunshine and roses...then something small or nothing changes it and it's rain and thunderstorms and another week of seclusion for me. I really related with what you said about peoples love for you "frustrated love" you said it perfectly!

 Do you get angry very easily ? Are your moods effected by epilepsy?

Yes and definately! I think my epilepsy affects my mood and also that my moods affect my epilepsy. I feel like it all goes hand in hand. I have a very rocky romantic relationship that I attribute most of our problems with my moods and seizures. (have you looked at all into bipolar disorder? I know this is touchy but E and bipolar are closely related.)

Are you embarrassed to be the way you are?

Yes I am. theres not much else to say about that :(

~*Ari*~

Re: Epilepsy and Relationships

Submitted by ronzo9230 on Sun, 2012-03-04 - 02:07

How does epilepsy effect the relationships in your life?

It's tough lost lots of friends who are terrified to be around me,cause they think i'll have a seizure and they'll get in trouble.My dad for a long time didn't understand how serious epilepsy was till he finally saw me have seizure kinda of a plus cause he finally understands,,,,but its a minus at the same time cause he treats me differently.

Do you get angry very easily ? Are your moods effected by epilepsy?

I don't get angry over having seizures in general.I do get mad at the fact that having seizures makes it so much harder to do stuff like work and what not since i have to wake up earlier than i have to so i can wake up slowly in order for my brain not too overload.Sometimes i want to have seizures cause for those 30mins-1hour after them i forget how shitty my life really is.

Are you embarrassed to be the way you are?

No i am not embarrassed  to have epilepsy i have had seizure's in public and woken up to people standing over me looking like they are in more shock than me,i just laugh at them and get up sometimes they try to hold me down thinking i need to go to the hospital sometimes they think i overdosed on drugs or something but i just don't care about having seizures anymore,it's nothing more than annoyance to me if i have a seizure so the fuck what just gotta continue on with my day like anyother day.

 

I've had seizures since i was 13 im 19.For a while i was in denial about having seizures and was very embarrased about having them in public.I don't take any medications cause i would rather have a seizure once in a while then have those side effects constantly,and i've been on all the meds out there.For 2 years i was a drug addict did every drug out there it wasn't my seizures that caused me to get into drugs just the fact that my life sucked so bad for other reason still does but i cleaned my self up by myself and been clean for over a year my only sin is my cigarette.My only advice for you would be to just keep walking forward in life,don't care what people think it's not your promblem to know what they think,and like i said just keep walking maybe something good will happen maybe it wont,who knows,no one does.Good Luck :)

How does epilepsy effect the relationships in your life?

It's tough lost lots of friends who are terrified to be around me,cause they think i'll have a seizure and they'll get in trouble.My dad for a long time didn't understand how serious epilepsy was till he finally saw me have seizure kinda of a plus cause he finally understands,,,,but its a minus at the same time cause he treats me differently.

Do you get angry very easily ? Are your moods effected by epilepsy?

I don't get angry over having seizures in general.I do get mad at the fact that having seizures makes it so much harder to do stuff like work and what not since i have to wake up earlier than i have to so i can wake up slowly in order for my brain not too overload.Sometimes i want to have seizures cause for those 30mins-1hour after them i forget how shitty my life really is.

Are you embarrassed to be the way you are?

No i am not embarrassed  to have epilepsy i have had seizure's in public and woken up to people standing over me looking like they are in more shock than me,i just laugh at them and get up sometimes they try to hold me down thinking i need to go to the hospital sometimes they think i overdosed on drugs or something but i just don't care about having seizures anymore,it's nothing more than annoyance to me if i have a seizure so the fuck what just gotta continue on with my day like anyother day.

 

I've had seizures since i was 13 im 19.For a while i was in denial about having seizures and was very embarrased about having them in public.I don't take any medications cause i would rather have a seizure once in a while then have those side effects constantly,and i've been on all the meds out there.For 2 years i was a drug addict did every drug out there it wasn't my seizures that caused me to get into drugs just the fact that my life sucked so bad for other reason still does but i cleaned my self up by myself and been clean for over a year my only sin is my cigarette.My only advice for you would be to just keep walking forward in life,don't care what people think it's not your promblem to know what they think,and like i said just keep walking maybe something good will happen maybe it wont,who knows,no one does.Good Luck :)

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