Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

How exactly do aura's feel

Mon, 05/15/2006 - 11:30
How exactly do aura's feel? Can you have aura's and not have an actual seizure? I think I had some this weekend. I went off into like a "spacy" feeling. Like I was tingling and I couldn't make myself snap out of it for a few seconds. I have had a headache since I has these feelings. I have had E a long time, but I am new to all the terminology and so forth. Thanks.

Comments

Re: After reading the replies, I

Submitted by SaraOwens on Sun, 2006-09-03 - 11:52
I've read that the deja-vu is not an aura, but an actual simple partial seizure. My auras make me feel as if the back of my neck is tightening, and I do tend to have a kinda creepy feeling, like someone's watching me from afar. My simple partials are in deja-vu form. There are other forms of partials as well. I'll have a GM in my sleep when my stress factor has built up over time. Yeah, the deja-vu is an odd feeling, but now that I know it's a seizure, I can usually make it go away by acknowleding this fact, and convincing myself that it's a trick my mind is playing on my consciousness! It only lasts for a few seconds now. I take Trileptal, and it helps alot. Barely any side effects, and it's compatible with most other medications!

Re: After reading the replies, I

Submitted by Clairebrandt on Thu, 2012-03-01 - 05:42
Hi, I just read what you said about the deja-vu thing, and about it being a simple partial seizure. I suffer with Frontal Lobe nocturnal epilepsy, which was diagnosed 2 years ago, and I take Lamotrigine to control my seizures. I only started to get the deja-vu feeling about 3 months ago, but it's started happening more and more often. Before I'd have once every couple of days, but now it happens between 3-4 times a day (I've been carrying around a pen and marking my arm whenever it happens) Should I talk to my GP? Because I'm worried that if they are seizures then maybe my medication isn't working properly, and it's happening in school (I'm 17). What do you think I should do? Thanks x

Re: After reading the replies, I

Submitted by tcameron on Thu, 2012-03-01 - 15:56

Auras are simple partial seizures.  These happen while you are concious, so they're not nocturnal.  When you lose conciousness, the seizure changes from S.P. to complex partial (C.P.)  However, since your diagnosis is frontal nocturnal epilepsy, it looks like the diagnosis needs to be re-evaluated.  For that reason, it might be time to see a neurologist.  The problem with AEDs not working, is that these can turn into real convulsive seizures; which can be extremely dangerous!  It's time to see your doctor. 

Auras are extremely valuable because they give you time to sit down so you don't fall and injure yourself.  I experienced auras since I was a little girl.  It was always the same experience; I was afraid to tell anyone; I thought they'd think I was crazy.  I wasn't diagnosed with TLE until my 1st convulsive seizure in 1975.   I continued to experience auras seconds before my seizures until the mid 1990's.  Now I need to wear a helmet because I never know when it will occur.  My AEDs don't completley work, although I've tried them all.  I'd probably be having many more seizures without them.  That's why I'm under the direct care of an epileptologist; a neurologist who specializes in epilepsy. 

If your G.P. can't find some AEDs to completely controll your s.p. seizures, see a neurologist.

Good luck!

Auras are simple partial seizures.  These happen while you are concious, so they're not nocturnal.  When you lose conciousness, the seizure changes from S.P. to complex partial (C.P.)  However, since your diagnosis is frontal nocturnal epilepsy, it looks like the diagnosis needs to be re-evaluated.  For that reason, it might be time to see a neurologist.  The problem with AEDs not working, is that these can turn into real convulsive seizures; which can be extremely dangerous!  It's time to see your doctor. 

Auras are extremely valuable because they give you time to sit down so you don't fall and injure yourself.  I experienced auras since I was a little girl.  It was always the same experience; I was afraid to tell anyone; I thought they'd think I was crazy.  I wasn't diagnosed with TLE until my 1st convulsive seizure in 1975.   I continued to experience auras seconds before my seizures until the mid 1990's.  Now I need to wear a helmet because I never know when it will occur.  My AEDs don't completley work, although I've tried them all.  I'd probably be having many more seizures without them.  That's why I'm under the direct care of an epileptologist; a neurologist who specializes in epilepsy. 

If your G.P. can't find some AEDs to completely controll your s.p. seizures, see a neurologist.

Good luck!

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.