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Epilepsy and Memory Loss
Sun, 10/08/2006 - 19:36Comments
Re: Epilepsy and Memory Loss
Submitted by Mejia1990 on Mon, 2012-02-27 - 04:46
Your story almost exactly matches mine. Same age, same meds. It's so nice to hear that in not alone. I dont think many people understand what we go through. And at such a young age.
Rebecca
Your story almost exactly matches mine. Same age, same meds. It's so nice to hear that in not alone. I dont think many people understand what we go through. And at such a young age.
Rebecca
Re: Epilepsy and Memory Loss
Submitted by beachjunkie3 on Sun, 2009-11-29 - 18:45
Hey Emily,
I wanted to write you to share my experiences. They sound very similar to yours! I am 21 and had my first grand mal seizure a year and a half ago (I think - I believe I had a few partials before that) and I was put on 500mg of Keppra. I noticed I was all of a sudden angry, impatient and just sad. Most often nothing triggered the feelings...it just came out of nowhere and it was very frustrating with no cause for why I felt this way! I felt alone and that no one could understand how I was. I would wake up crying and have no idea why. I was determined to get to the bottom of it. My doctor was convinced that seizures didn't cause the feelings so he told me to wait it out a little longer and see if anything changed. It didn't - go figure - so I went back the next time I was home from college and he decided to take me off the Keppra and and try me on Lamictal. I see that you do already take it, but after Keppra was out of my system, I've felt SOOOO much better!! The anger and sadness is almost gone! It comes in random waves but rarely. I TRULY believe the Keppra was the cause for my feelings!! I mean, it makes sense since it didn't happen before the seizure and after I was weaned off, things changed. Maybe suggest this to your doctor...I don't know if u need the keppra but its worth a shot!
I do also have memory loss - mostly long term - friends and family will bring up past memories and I have a hard time remembering many of them - its very sad and embarassing! Some short term for me but not like the long term. Know you're not alone! Its so hard because we are young and its scary to think if itll only get worse.
Hang in there!!! I'd love to hear what you think...or anyone else who has had a similar situation???
- Lex
Hey Emily,
I wanted to write you to share my experiences. They sound very similar to yours! I am 21 and had my first grand mal seizure a year and a half ago (I think - I believe I had a few partials before that) and I was put on 500mg of Keppra. I noticed I was all of a sudden angry, impatient and just sad. Most often nothing triggered the feelings...it just came out of nowhere and it was very frustrating with no cause for why I felt this way! I felt alone and that no one could understand how I was. I would wake up crying and have no idea why. I was determined to get to the bottom of it. My doctor was convinced that seizures didn't cause the feelings so he told me to wait it out a little longer and see if anything changed. It didn't - go figure - so I went back the next time I was home from college and he decided to take me off the Keppra and and try me on Lamictal. I see that you do already take it, but after Keppra was out of my system, I've felt SOOOO much better!! The anger and sadness is almost gone! It comes in random waves but rarely. I TRULY believe the Keppra was the cause for my feelings!! I mean, it makes sense since it didn't happen before the seizure and after I was weaned off, things changed. Maybe suggest this to your doctor...I don't know if u need the keppra but its worth a shot!
I do also have memory loss - mostly long term - friends and family will bring up past memories and I have a hard time remembering many of them - its very sad and embarassing! Some short term for me but not like the long term. Know you're not alone! Its so hard because we are young and its scary to think if itll only get worse.
Hang in there!!! I'd love to hear what you think...or anyone else who has had a similar situation???
- Lex