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How many people have developed epilepsy around or after 2000?

Sun, 08/15/2010 - 19:16
Although many people are born with epilepsy, i cant help but notice a great deal of people (myself included) who developed epilepsy within the past ten years.

Comments

Re: How many people have developed epilepsy around or after 2000

Submitted by jo1976 on Thu, 2012-02-09 - 16:59
Hi! I'm a 35 year old mum of 3 (ages 14, 13 & 5) from the UK. I had 3 seizures, 6 months apart at the age of 6. Doctor said they were triggered by rapid growth. I was seizure free then until August '97, age 21, when I experienced my first grand mal whilst breast feeding my my eldest son who was 3 days old. I have then gone on to have sporadic seizures, roughly 1 or 2 a year, either whilst pregnant or shortly after. Stress, hormonal changes and extremes of anything are also triggers i.e. tiredness, worry, alcohol or hunger. I have recently stopped taking the contraceptive pill and the seizures have unfortunately increased. I am having what I call 'flicks', absenses, mood swings and inability to think straight or concentrate immediately before a seizure. I'm pissed because although many sufferers would consider me 'lucky' to only experience a few, widely spaced apart seizures, the fact that I just have no idea or warning that I'm going to have one is a pain. Ungrateful, I know but if I'm going to have epilepsy, please let it be a little predictable lol! So yeah, pissed! Jo x

Re: How many people have developed epilepsy around or after 2000

Submitted by Allina on Fri, 2012-02-10 - 10:20
Sad part about that is, you could have been having seizures those entire 7 years and just not know it. My first EEG showed two seizures and they were only a second long.

Re: How many people have developed epilepsy around or after 2000

Submitted by Spike. on Wed, 2011-09-14 - 17:04

I already know that this topic thread is an old one because it's going to be turning 13 months old tomorrow, so I'm sure the individual who created this topic thread rarely visits this community forum, if they visit it all.

For the past few years the guesstimated number of people who have epilepsy worldwide might be somewhere between 50,000,000 to 60,000,000 people. And with the medical assumptions of that guesstimated number increasing year by year, I'm going to say that the guesstimated number of people who have developed epilepsy back around or after the year 2000, would logically have to be somewhere below 50,000,000 to 60,000,000 people worldwide.

But let's say if someone came up with a ballpark figure as being, oh let me pick a number of about 142,051 people worldwide. With how much doctors love to focus their attention on "statistical numbers", how long do you suppose it would take them to come up with the exact number for however many people who developed epilepsy around or after the year 2000? How much money do you suppose it would take in order to have a company come up with that number? Above or below $1 million? For whatever the answers would be to these questions, would there be anything useful or positively beneficial at finding out the answer for how many people developed epilepsy around or after the year 2000? 

There is just too much negativity at getting beneficial and up-to-date information about seizures and epilepsy to people's attention. Easy example, the next time you go in to visit a neurologist, look around the waiting room to see if there are any handouts, leaflets, pamphlets, or anything that you or anyone else can look at, which pertains to seizures and/or epilepsy. If you are unable to locate any information in the waiting room, then ask any medical staff member if they have any information pertaining to seizures and/or epilepsy that you can take home with you. If they do have information, but the information is not in plain sight, then ask the medical staff member why the information is not displayed in plain sight for everyone to see?

Bruce (I'm not a doctor, but instead, an epilepsy support group leader, epilepsy advocate, who has epilepsy.)

I already know that this topic thread is an old one because it's going to be turning 13 months old tomorrow, so I'm sure the individual who created this topic thread rarely visits this community forum, if they visit it all.

For the past few years the guesstimated number of people who have epilepsy worldwide might be somewhere between 50,000,000 to 60,000,000 people. And with the medical assumptions of that guesstimated number increasing year by year, I'm going to say that the guesstimated number of people who have developed epilepsy back around or after the year 2000, would logically have to be somewhere below 50,000,000 to 60,000,000 people worldwide.

But let's say if someone came up with a ballpark figure as being, oh let me pick a number of about 142,051 people worldwide. With how much doctors love to focus their attention on "statistical numbers", how long do you suppose it would take them to come up with the exact number for however many people who developed epilepsy around or after the year 2000? How much money do you suppose it would take in order to have a company come up with that number? Above or below $1 million? For whatever the answers would be to these questions, would there be anything useful or positively beneficial at finding out the answer for how many people developed epilepsy around or after the year 2000? 

There is just too much negativity at getting beneficial and up-to-date information about seizures and epilepsy to people's attention. Easy example, the next time you go in to visit a neurologist, look around the waiting room to see if there are any handouts, leaflets, pamphlets, or anything that you or anyone else can look at, which pertains to seizures and/or epilepsy. If you are unable to locate any information in the waiting room, then ask any medical staff member if they have any information pertaining to seizures and/or epilepsy that you can take home with you. If they do have information, but the information is not in plain sight, then ask the medical staff member why the information is not displayed in plain sight for everyone to see?

Bruce (I'm not a doctor, but instead, an epilepsy support group leader, epilepsy advocate, who has epilepsy.)

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