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Nocturnal Seizures / Night seizures

Wed, 09/30/2009 - 19:45
Hello, My name is Danny I am 27 and have been dealing with seizures since 2004. Never before that date have i had one sigh of seizures. it has been one of the worst and hardest battles i have been dealing with also. one questions i have is that the seizures i have are weird, starting like this all the seizures i have had to this day were at night after i had woken up from sleeping, i would wake up have to pee and in a sweat which is weird.  also i have never had any during the day but i have had several grand mal seizures at night like i said. so if anyones has any ideas why this happens please let me know and hope all of you are doing better with your epilepsy.

Comments

Re: Nocturnal Seizures / Night seizures

Submitted by csiharrison83 on Wed, 2010-07-21 - 16:33
yes i am i am taking phenytion sodium, tegretol and a chewable dilantin tablet....yes i know the feeling i was a mads for my anxiety as well but off and i am going to get back on them....hope that helps let me know..

Re: Nocturnal Seizures / Night seizures

Submitted by danp26 on Sat, 2011-12-31 - 16:33

Hello

Ive been quite lucky with meds, not taking more than 300mg in one day, im so glad im not on more, couldn't imagine how people feel taking huge doses of meds.

I am on phenytoin but on a 22 week meds change over to lamotrigine as there is something called 'phenytoin syndrome' which is caused by long term use of phenytoin.

What meds are you on ?

Danny

Hello

Ive been quite lucky with meds, not taking more than 300mg in one day, im so glad im not on more, couldn't imagine how people feel taking huge doses of meds.

I am on phenytoin but on a 22 week meds change over to lamotrigine as there is something called 'phenytoin syndrome' which is caused by long term use of phenytoin.

What meds are you on ?

Danny

Re: Nocturnal Seizures / Night seizures

Submitted by hopewithseizures on Tue, 2010-09-07 - 16:10

I had my first gran mal April 2007.  Since I've kept notes by dates, doctor visits, blood test numbers, various tests I've gone through, how my body feels with diet changes, excercise habits and medication changes.   I've had multiple EEG's and MRI's and they all have been NORMAL.  I'm sure you've read that there are a variety of reasons a person can have seizures.  In short, I've learned that my thyroid (TSH #) was 9 in Dec. 2007.  Normal range is 0.465-4.68.  I was hypo which meant I was tired among other ways it affects my body.  Now my TSH is around 3 and it seems to my personal number for feeling good.  I've learned that if I eat high glucose(sugar) food for example, a bowl of ice cream around supper time and don't eat a high grain sandwich before bedtime I will have dreams, wake up startled, have a feeling to urinate, sweat sometimes, with a choking feeling like I was going to throw up that in the past has lead to uncontrollable shaking of my right hand and body, before passing out into a gran mal.  This event has happened to me in Sept. 2007 and Jan. 2008.  Scary, yes.

I've gone from 750 mg x 2 daily generic (Keppra) to 250 mg x 2 daily with my neurologist's guidance.  I work with my endocrinologist in getting my thyroid medication level right.  I work with my GP to keep him up to date and his guidance on blood glucose levels, blood pressure, weight gain, and cholesterol.  I do my best to watch what I eat, don't over excercise (over 2 hours), and always eat a high grain sandwich with protein.  I avoid pop and juices.  I drink water, tea and milk as much as possible.

Hope with Seizures

I had my first gran mal April 2007.  Since I've kept notes by dates, doctor visits, blood test numbers, various tests I've gone through, how my body feels with diet changes, excercise habits and medication changes.   I've had multiple EEG's and MRI's and they all have been NORMAL.  I'm sure you've read that there are a variety of reasons a person can have seizures.  In short, I've learned that my thyroid (TSH #) was 9 in Dec. 2007.  Normal range is 0.465-4.68.  I was hypo which meant I was tired among other ways it affects my body.  Now my TSH is around 3 and it seems to my personal number for feeling good.  I've learned that if I eat high glucose(sugar) food for example, a bowl of ice cream around supper time and don't eat a high grain sandwich before bedtime I will have dreams, wake up startled, have a feeling to urinate, sweat sometimes, with a choking feeling like I was going to throw up that in the past has lead to uncontrollable shaking of my right hand and body, before passing out into a gran mal.  This event has happened to me in Sept. 2007 and Jan. 2008.  Scary, yes.

I've gone from 750 mg x 2 daily generic (Keppra) to 250 mg x 2 daily with my neurologist's guidance.  I work with my endocrinologist in getting my thyroid medication level right.  I work with my GP to keep him up to date and his guidance on blood glucose levels, blood pressure, weight gain, and cholesterol.  I do my best to watch what I eat, don't over excercise (over 2 hours), and always eat a high grain sandwich with protein.  I avoid pop and juices.  I drink water, tea and milk as much as possible.

Hope with Seizures

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