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Ocular Migraines and Simple Partial Seizures

Mon, 05/12/2008 - 08:30

Hi Everybody,

About three years ago I had my first ocular migraine.  It started out as a small blank spot in the front of my vision and then spread out to my peripheral vision.  I had a blind spot and sparkling lights for about 20 minutes.  During this time I also had trouble reading, which scared me, so I went to the hospital.  They told me I had experienced an ocular migraine so they sent me home.

 After about 6 months I had another similar experience and then went another year before having another.  Althogether, I have only had 3 of these migraines.

After my first migraine, however, I started noticing that almost daily I would see a single black dot in the center of my vision when I'd blink.  It lasts about 10 seconds and then disappears.  Eventually, I got nervous enough to go to the neuro about it and she tested me for epilepsy.

My EEGs (30 min and 24 hour ambulatory) came back slightly abnormal, but other tests (MRI, corotid artery) were totally fine.  I am currently taking 500 mg of Keppra 2x day but am still seeing the black dots.  They seemed to disappear when I wasn't stressed out during the summer, but have reappeared this year (I'm in a one year Master's program and am job hunting, etc. so I'm really stressed!!)

Does anyone have anything similar to this? I'm going to call my neuro today to see if it's strange that the dots haven't disappeared.  She said that it could only be simple partial seizures or migraines.  Any similar stories would be appreciated!

-April

Comments

Re: Ocular Migraines and Simple Partial Seizures

Submitted by klhappytime on Thu, 2011-11-10 - 01:21
I have been having this problem since I was 7 years old, I am now 34. I have had at least 30 of these headaches if not more. When I was a kid they would give me vicodin. It NEVER helped. Last year I had an increase in these headaches and missed a lot of work because of them. I went to a neurologist who prescribed every medication in the migraine world to no avail. Finally she said she gives up on conventional medicine and told me to take a vitamin B complex daily. It worked. The funny lights in your eyes are called an aura. Sometimes I will get an aura, but I will try to ignore it. It will go away now. Someone told me vitamin B helps with stress. I never knew I was stressed, guess I was, cause now I'm ok. I encourage anyone with these symptoms to go to a doctor right away. My symptoms have gotten worse over the years. Most recently I was getting an aura, losing depth perception, vomiting violently, had numbness in my extremities, loss of comprehension, loss of ability to speak. Bad stuff, but also common symptoms of stroke. So take this very seriously. It is better to be cautious and seek help than to try to fix it yourself and have it be something more serious than a headache. My grandmother also get these, and she has been hospitalized twice in the last 5 months because they thought she was having a stroke. Hope this helps.  

Re: Ocular Migraines and Simple Partial Seizures

Submitted by cynglassey on Tue, 2011-11-15 - 20:49
I just sort of came across this and was shocked.  I have intractable Epilepsy. I take 5000mg Keppra a day, 900mg Lamictal a day, and 550 Zonagran a day.  But a few years ago I started having what the neuro-eye doctor called occular migraines.  I dont have any pain when I get them.  But I get double vision and lose my balance; definately cant drive home from where Im at.  They are worse in the summer when its brighter.  Riding in a car triggers it a lot of time.  If I turn my head too fast it triggers it.  I wear sunglasses as much as possible.  Once it starts to get less sunny they seem to ease up.  I was recently put on some medicine that helps, strangely it is a blood pressure medicine.  I take 80mg Propranolol ER in the morning and 40mg Propranolol in the evening.  I also have Maxalt to take when I actually feel one coming on and if I get one ASAP Im good if I wait too long the rest of the day is spent sitting or laying in the dark.  I have been told these have nothing to do with my Epilepsy but I have my doubts.  It seems to me they might be connected to some photosensitive seizures... Hope this helps someone.

Re: Ocular Migraines and Simple Partial Seizures

Submitted by winnt on Tue, 2013-10-01 - 18:36
I get ocular migraines from time to time.  The most important thing for me is to always carry around two 200 mg ibuprofen tablets.  AS SOON as I see a blindspot, I take both tablets with a full glass of water.  This will prevent the migraine from turning into a headache later.  If I don't take the pills immediately, the blind spot gets more noticable, then I see the bright neon-type lights (kind of like the neon glass lights on a Ferris wheel) but more sparkly.  It can continue into partial numbness of my fingers/hand, and possibly into slurred/scrambled speech.  I've only had the scrambled speech a couple times.  I also seem to feel some strange heart fluttering, especially if I take a deep breathe and exhale slowly, but that could just be related my anxiety over getting a migraine.  So, after you take your two ibuprofen, try to lie down in a dim room and just breathe and relax.  You need to make sure your clothes are a bit loose as well.  I've noticed I seem to get migraines when I am hunched over for a period of time and I'm not taking in full breaths.  I haven't found any food triggers, but I seem to get them after a really lousey night's sleep, or perhaps a couple nights in a row.  Also, if I go too long without eating, I am more likely to get one.  Of course, if I have all my triggers together, it is almost definite that I will get one.  As far as the two 200 mg dose of ibuprofen, I'm not sure how ibuprofen works to halt the progression of my ocular migraines, but that is what works for me.  I never get headaches or take medicine so I might be able to get by with less than that.

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