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Epileptics to not get near enough funding for research compared to other!!!!!!
Thu, 10/13/2011 - 06:26Comments
Epileptics to not get near enough funding for research compared.
Submitted by GodivaGirl on Sat, 2011-10-15 - 20:00
Hi There,
I'm in Ontario, Canada so I know our medical systems are different, but I do still agree that there does need to be more funding and support. This question is more just out of curiousity, because it has taken me over a year to go through testing and come to the end of neurosurgery (I'm in recovery - 3 months seizure free). As your RNS was looked into were you given the option to be a research case or a part of research studies. My case was done at a teaching hospital - residents learned from my neurologist, from my surgeon and I signed consent on a few research projects that will help them learn how to diagnose the type of epilepsy I have even earlier. Doctors do what they can with the health care systems in place. Sometimes you gotta meet 'em in the middle. There are actually ways to donate money to the hospital that has helped me, and I've told lots of my friends if you can ever afford it, that team does lots and they'd love the help on their research.
Robarts Research Institue works with LHSC as a team for all neurological things, not just epilepsy. Epilepsy just happened to be my case, so that's the team of doctors that worked on me.
What I'm getting at is, since we're the ones diagonsed help with the research projects, as we can.
Hi There,
I'm in Ontario, Canada so I know our medical systems are different, but I do still agree that there does need to be more funding and support. This question is more just out of curiousity, because it has taken me over a year to go through testing and come to the end of neurosurgery (I'm in recovery - 3 months seizure free). As your RNS was looked into were you given the option to be a research case or a part of research studies. My case was done at a teaching hospital - residents learned from my neurologist, from my surgeon and I signed consent on a few research projects that will help them learn how to diagnose the type of epilepsy I have even earlier. Doctors do what they can with the health care systems in place. Sometimes you gotta meet 'em in the middle. There are actually ways to donate money to the hospital that has helped me, and I've told lots of my friends if you can ever afford it, that team does lots and they'd love the help on their research.
Robarts Research Institue works with LHSC as a team for all neurological things, not just epilepsy. Epilepsy just happened to be my case, so that's the team of doctors that worked on me.
What I'm getting at is, since we're the ones diagonsed help with the research projects, as we can.
Thanks!
Submitted by Anonymous on Sat, 2011-10-15 - 17:46
Great idea and thanks for all your help! Give the office a call if you want to talk about support of epilepsy research through here! The more the merrier! It's great to have such motivated and passionate people! Epi_help Resource Specialist