Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Nocturnal seizure... what is it?!
Tue, 07/24/2007 - 22:24Comments
Re: Nocturnal seizure... what is it?!
Submitted by mbounds411 on Tue, 2011-08-16 - 22:29
Re: Nocturnal seizure... what is it?!
Submitted by mgburton on Thu, 2011-10-13 - 13:06
I have nocturnal epilepsy as well which started when I was 16. I am now 44 and have been seisure free for almost 12 years, thanks to God! They are terrible, and it helps to know you are not alone in this! I have been taking Tegretol (carbamezapine) since I was about 18 and this has worked wonderfully for me EXCEPT for the fact they brought on panic attacks as a side effect. As well, for the past year I have been having some serious problems with the twitching and falling down, but no actual grand mal seisures. Anyone else experience a similar thing? I am wondering if it is because I am entering menopause, or if I am becoming immune to the drug.
Something all of you haven't mentioned that I have experienced is that after a seisure I would have a temporary memory loss, so severe that at times I didn't even know my own family. It would slowly come back to me over a period of hours. As well, it would feel like my limbs were made of lead after a seisure, and I would be very stomach sick.
I read somewhere that Tegretol is not the best drug for Epilepsy that includes twitching or involuntary body movements. Has anyone else come across that? I know you can't always believe what you read online, and I am curious as to how many out there have read this as well.
I am scared to switch to another medication as this one has been working so well for me. Has anyone else switched and if so, how did that work for you? Glad I found this forum. Hang in there folks, it is a very tough thing to live with but when you find a good doctor and treatment it gets much better!
I have nocturnal epilepsy as well which started when I was 16. I am now 44 and have been seisure free for almost 12 years, thanks to God! They are terrible, and it helps to know you are not alone in this! I have been taking Tegretol (carbamezapine) since I was about 18 and this has worked wonderfully for me EXCEPT for the fact they brought on panic attacks as a side effect. As well, for the past year I have been having some serious problems with the twitching and falling down, but no actual grand mal seisures. Anyone else experience a similar thing? I am wondering if it is because I am entering menopause, or if I am becoming immune to the drug.
Something all of you haven't mentioned that I have experienced is that after a seisure I would have a temporary memory loss, so severe that at times I didn't even know my own family. It would slowly come back to me over a period of hours. As well, it would feel like my limbs were made of lead after a seisure, and I would be very stomach sick.
I read somewhere that Tegretol is not the best drug for Epilepsy that includes twitching or involuntary body movements. Has anyone else come across that? I know you can't always believe what you read online, and I am curious as to how many out there have read this as well.
I am scared to switch to another medication as this one has been working so well for me. Has anyone else switched and if so, how did that work for you? Glad I found this forum. Hang in there folks, it is a very tough thing to live with but when you find a good doctor and treatment it gets much better!
Re: Nocturnal seizure... what is it?!
Submitted by reba on Thu, 2008-04-03 - 17:22
I would sometimes have nocturnal seizures. When I awoke, I would be very sick to my stomach, be wet from losing my bladder control, sometimes with a sore bitten tounge and the fear that something has happened. My husband would tell me that I had had a seizure. Losing bladder control and tounge biting happend sometimes even if I didnt have night seizures. Since having right templobe surgery in '07, I have been blessed to not having any since. Take Care, Becky
I would sometimes have nocturnal seizures. When I awoke, I would be very sick to my stomach, be wet from losing my bladder control, sometimes with a sore bitten tounge and the fear that something has happened. My husband would tell me that I had had a seizure. Losing bladder control and tounge biting happend sometimes even if I didnt have night seizures. Since having right templobe surgery in '07, I have been blessed to not having any since. Take Care, Becky