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Epileptic Seizure Monitor Alarm System
Tue, 02/19/2008 - 01:46Hello everyone,
Our daughter's seizure have been occurring during the time when she first falls asleep (she's had 2 and they both happened during that time.) Since she had her first one (August '07), she has been sleeping with us in our room and her just-decorated-cute room has not been utilized since.
My husband has been researching seizure monitors and found this:
http://www.medpage-ltd.com/page65.html
Has anyone out there used this or something similar? If so, how effective are they and would anyone recommend it or be against it? Any thoughts or opinions are greatly appreciated!
~Marvy
Re: Epileptic Seizure Monitor Alarm System
Submitted by brandis_mom on Fri, 2011-09-16 - 01:43
I wish the doctors had told us about alarms and monitors, my daughter also passed away from SUDEP at age 23 on july 17, 2011. How do you get thru evedyday? Not one doctor even told us that death was a posibility. I cant get past the anger of such a senseless death. I advise doing a lot of research before tragedy hits