Clobazam

My son has been using clobazam with phenobarbital for about a year and has been seizure free. He has had seizures since he was 18 months. He is aggressive but that is better than having seizures, and for the most part he can live a normal kid life. He is in school now in kindergarten and our stress level is down, because he is seizure free. This is awesome! I highly recommend this for your child if he is having seizures. Good Luck!

My son has been on Clobazam for about 18 months (he's 15 years) - he's at 30 mg BID and while it did stop the myoclonic clusters he was having every morning, it has done nothing for the tonic clonic seizures he has daily.  Our neuro didn't expect it to do anything for his TC's though.  We've been getting it from Canada the whole time, so I am glad to see that it is now available in the US (brand name Onfi) - though I've been told that we should keep getting the generic from Canada because his Katie Beckett Medicaid will not pay for it until mid-year, probably (brand names are SO EXPENSIVE).

i have a six month old baby girl ...she started having seizures at 7 weeks old...and was diagnosted with a seizure disorder......her neuro put her on phenobarital...is started to work for 3 weeks,then she started having diff kinds of seizures...so we went back and she started her on frisium/clobazam on top of her phenobarb...so she is now takin 12 mls of pheno a day as well as 5 mls of the clobazam.,.....im not to sure if i like it yet...she doesnt seem to be herself....she is now very quite and just seems to be out of it....i dont no what to do as i dont want her to have her seizures but i also dont want her to be doped up all the time...i am very confused and not sure if i want to tell her doc i do not like the clobazam!!!!!does any one have any suggestions on what to do??????