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Clobazam

Fri, 12/14/2007 - 21:18
I was wondering if anyone has tried Clobazam.  If so, what are your experiences with the drug?  We are going to start this next week.

Comments

Re: Clobazam

Submitted by concerned mum on Tue, 2010-03-09 - 07:24
Hi im new to this site, my son (now 2yrs) started having seizures when he was 9mths old, they have tried him on  epilim which didnt work and so weaned him onto tegretol which was improving up until last week where he went from having only 1 to 2 seizures a week to suddenly having 8 to 13, our neurologist suggested we take clobazam  just 5mg at night just for 1 week to allow him and his altered dose of tegretol to catch up,

Re: Clobazam

Submitted by frisium on Wed, 2010-12-08 - 16:09

I have been on Clobazam for almost 10 years. My epilepsy started in my fourties. I have used this medication with no side affects what so ever. I only experience mini seizures (3sec.) about 4to 5 times a year. I only get a funny feeling that does not disrupt my activety at all.

Good lick

I have been on Clobazam for almost 10 years. My epilepsy started in my fourties. I have used this medication with no side affects what so ever. I only experience mini seizures (3sec.) about 4to 5 times a year. I only get a funny feeling that does not disrupt my activety at all.

Good lick

Re: Clobazam

Submitted by Lisa46077 on Sat, 2011-08-20 - 13:49

We started this drug in late May 2011 and have found it to be "THE" drug for our 16 year old daughter. We stopped Klonopin but still remain on Felbatol and Banzel.  Klonopin was making her so tired and negatively affecting her ability to think. We have seen only two short tonic seizures since starting this (3 months) and maybe one or two absence seizures a day. This is amazing since we were having tonic seizures in clustures of 5-6 at least twice a day and just didn't count the absence ones (they seems benign compared to the tonic ones) but there were many.

We did try Sabril and saw zero improvement but it did make her angry while taking it. Glad there was something else to try!

Lauren was out of school much of last semester and often combative with me.  Now she is thrilled to be going to school, doing great cognitively and quite a delightful child! KNOCK WOOD!

Lisa

We started this drug in late May 2011 and have found it to be "THE" drug for our 16 year old daughter. We stopped Klonopin but still remain on Felbatol and Banzel.  Klonopin was making her so tired and negatively affecting her ability to think. We have seen only two short tonic seizures since starting this (3 months) and maybe one or two absence seizures a day. This is amazing since we were having tonic seizures in clustures of 5-6 at least twice a day and just didn't count the absence ones (they seems benign compared to the tonic ones) but there were many.

We did try Sabril and saw zero improvement but it did make her angry while taking it. Glad there was something else to try!

Lauren was out of school much of last semester and often combative with me.  Now she is thrilled to be going to school, doing great cognitively and quite a delightful child! KNOCK WOOD!

Lisa

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