Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Does anyone else feel like you know when your seizure is coming?

Fri, 01/25/2008 - 16:03

Hey, I'm new...I've had epilepsy since I was about 11...I'm almost 18 now. Anyways, sometimes, most days when I'm about to have a seizure, throughout the day, I have these weird "feelings". I can't really describe it, but I think there is a word for it, like a warning signal I guess. I don't know if anyone knows what I'm talking about. But the feeling is really weird, like all of a sudden, I get the chills, and my body feels cold, and I get this weird feeling, almost like a da sha vuu, like I remember "thinking" this thought before, but then I forget it. I don't know...it's very weird, and I know I'm probably not making any sense. Anyways, I know I'm not having a seizure then because I am fully conscious and don't make any movements. But I might have a few of those moments through out the day leading up to my seziure.

Anyways, I was just wondering if anyone else got thos feelings, since I suspect it's related to my epilepsy. Or maybe you want to share any other ways you know you're seziure is coming on.

I have complex partial seizures by the way.

Comments

Hi, I've been having

Submitted by danyellehannah on Tue, 2011-06-28 - 23:16

Hi,

I've been having grand mal seizures since I was 14 (now 19) and your right the feeling you get is hard to explain but I will try my best. I'll feel a bit off all day and right before I'll sort of get a de ja vu feeling, I won't remember what I was thinking or talking about, some light headedness. Then all the sudden I can't talk, I don't know my surroundings, I feel sick to my stomach, and then it starts to happen sometime after that.

Thank you for sharing,

Hi,

I've been having grand mal seizures since I was 14 (now 19) and your right the feeling you get is hard to explain but I will try my best. I'll feel a bit off all day and right before I'll sort of get a de ja vu feeling, I won't remember what I was thinking or talking about, some light headedness. Then all the sudden I can't talk, I don't know my surroundings, I feel sick to my stomach, and then it starts to happen sometime after that.

Thank you for sharing,

Does anyone else feel like you know when your seizure is coming?

Submitted by tcameron on Thu, 2011-09-08 - 23:44
The medical term for the feeling is an aura (simple partial seizure.)  The feeling of remembering something that never occured is de ja vu, which is your aura.  Be glad you have these experiences just before your seizures.  My seizures aren't controlled and I no longer have auras.  I need to wear a helmet to keep myself safe.   I would love to be able to show off my hair and live like I did when I was younger.  Auras are a gift....but might not last all your life!  Remember to thank God for your lovely gift. 

So happy I found this

Submitted by sierradanielle on Wed, 2013-10-16 - 22:32
Thanku guys I've been having seizures since I was about 9 I'm 16 now I get them about 5-10 times a week we can't find the right meds for me but I'm so happy I'm not the only one who goes through that horrible feeling this site just made me feel so normal and safe knowing a bunch of other people go through the same thing.. I feel like I want to be wrapped and covered from head to toe da sha vuu shivering and confusion don't know where I am.. I called them my 'bad feelings' before we found out that they were seizures thanku guys

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.