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Can Dystonia cause seizures? What is the relationship between these conditions?

Thu, 12/03/2009 - 19:32

Topic: Diagnostic Dilemmas and Testing

Yesterday I visited an epileptologist and he said that I my epilepsy may be caused by Dystonia. He said that since my myoclonic seizures are so generalized, especially since I have shaking in both hands as well as many different forms of seizures (petit mal, tonic-clonic, partial-complex, and atonic) that my case was different from a different type of seizure patient.

Has anybody ever heard or know anybody who could help me with this? I have been scouring the Internet but there hasn't been anything that I can find. Help!

Comments

Can Dystonia cause seizures?relationship between these condition

Submitted by kerry6854 on Sat, 2011-06-18 - 21:49

hi have you found anything more on this, it sounds simular to what im going through myself, 2 1/2 years later and no diagnosis. seizures that leave me disfigured and my body trunk twisted for anything from 30 mins to 4 days after a seizure or cluster of them, all i do know is my right eye is completely shut and after botox there is less pain and less seizures for up to 6 weeks definatly not as violent? hence dystonia and epilepsya possibility! mine was triggered from a fall. how did everyone else start thanks kerry

Re: Can Dystonia cause seizures?

Submitted by Dutchee on Wed, 2011-07-13 - 17:12

Hi, funny, my doctors cannot give me a diagnose, they still aren't sure, what I have: epilepsy or dystonia.... My 'episodes' can be triggered by 50 hrz, patterns or sunlight through trees etc. so they thougth it might be epilepsy. After looking at the videos, they think it could be dystonia. But I contract rhytmic (only my right part of body), about every 5 seconds when I have an episode, which can last up to 45 minutes, while remaining conscious. Because the conctrations hurt, they told me it couldn't be dystonia (??). Because of my goosebumps in patterns on both sides of my body, they thougt it could be epilepsy... so, they don't know...EEG does show abnormal activity on the left side of brain. I think I may have a combination... They explaned to my, the symptoms i'me having are coming from deep in my brain, so that could explain why I experience both... . Good luck to you. Love from Holland.

hi I am a Kerry also. my son

Submitted by Anonymous on Sun, 2014-09-07 - 21:05

hi I am a Kerry also. my son has ALD a metabolic disease an although he had a bone marrow transplant this is the aftermath of late diagnosis. this has gone on for 2 years at least, all the things you all describe. so what looks like seizures happening are really episodes. i was treating them like seizures. finally in desperation i brought him to a childrens hospital in michigan and finally they properly diagnosed him. should have been easy to do anywhere but no one did (miami, medical sucks there). so we are upping the klonipin slightly and using sinemet for a month to see if it responds.

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