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Name the BEST pediatric epilepsy dr/hospital - we will go ANYWHERE!
Thu, 09/07/2006 - 19:54Topic: Living With Epilepsy - Youth
I am searching the world for the best pediatric epilepsy doctor or hospital for my 10 yr old son. We have been to MN, OH, and 3 different hospitals in Chicago,IL. All of them take on my son's case & then ignore us when things dont get any better. They talk of surgery, but dont set up the necessary tests - I call them repeatedly since hes not doing better, hes worse - they increase his medicine, it does nothing, they do nothing. They rarely return my calls - in the meantime, my son suffers, his schooling suffers, his social life suffers. PLEASE - can anyone recommend the best dr out there for him? I will go ANYWHERE - plane, train, automobile - my son has right frontal lobe intractable epilepsy with complex partial seizures. he also suffers from post-ictal psychosis on a regular basis. Thank you for your help.
Comments
Re: Name the BEST pediatric epilepsy dr/hospital - we will go
Submitted by admarshall on Fri, 2013-03-15 - 16:25
Hands down, any of the four epileptologists at Cleveland Clinic. Dr. Wyllie, Dr. Gupta, Dr. Lichwanni or Dr. Kotogal.
Re: Dr. Kossoff & Johns Hopkins Keto Program
Submitted by kristicain on Sat, 2011-06-18 - 03:17
RE: Dr. ERIC KOSSOFF - I really would avoid this guy. His treatment of our daughter was SHAMEFUL. (see my comments about my daughter Katie & the truly good epileptologist, Dr. Zupanc, below).
Re: Name the BEST pediatric epilepsy dr/hospital - we will go
Submitted by admarshall on Fri, 2013-03-15 - 16:25
Hands down, any of the four epileptologists at Cleveland Clinic. Dr. Wyllie, Dr. Gupta, Dr. Lichwanni or Dr. Kotogal.