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Seizures only during sleep
Sat, 02/12/2011 - 16:03Topic: Living With Epilepsy - Youth
Hello! I'm new to this site...I don't have Epilepsy myself, but my 8 year old son does. I came here hoping to find some answers...if anyone has had any experience with this. My son had his first seizure when he was 23 days old. He started out with Tonic Clonic seizures and progressed into Grand Mals. The only thing that has remained the same, is they only happen while he's sleeping. I am fortunate enough to live in the Cleveland area...with access to some of the best hospitals in the US...and no one has been able to give me an answer. Doctors have never been able to pinpoint an exact location for the seizure activity. He's been through countless EEGs, MRIs, PET and CAT scans and no answers to be found. And his seizures have been changing so drastically. When they progressed to Grand Mals...it was always the same..he would wake up, let out an ear piercing scream and go into seizure activity. Now, it seems as if he's aware that they're happening, and trying to get up while they're occurring. He is currently on Triliptal..after starting out on Phenobarbital and Topamax, and he's had breakthrough seizures on all meds.
What I'm wondering is this...has anyone out there had any experience with this? With seizures that only happen during sleep. Either personally or with a child/loved one. I would appreciate any feedback! Even if just to share your story! Thank you for taking the time to read this!
Comments
My father has the same
Submitted by lihanwen1912 on Mon, 2017-11-13 - 22:44
My father has the same symptoms as your son. He have been through EEGs, MRIs, PET and CAT, but Doctors can't tell what is wrong. I felt like I started to have this symptoms too, sometimes I wake up really tired and sometimes I have little feeling I am ticing. Don't know what is going on. I am 22. Plan to go to a hospital to have someone check
I've personally had the same
Submitted by Cierra95 on Tue, 2017-11-14 - 19:30
I've personally had the same symptoms as your son since I was 13, I'm now 22. The seizures only happen while im sleeping, never had one while I was awake. I've had countless MRIs, EEGs, sleep studies, and CAT. Its absolutely annoying because I've gone through 3 Neurologist and not one can tell me what's going on..
Re: Seizures only during sleep
Submitted by lilliput on Sat, 2011-05-21 - 03:49
Hi,
I am a male and am 50 years old. I too get seizures only during sleep.
I had my first seizure when I was 21 and was wrongly diagnosed for having worms in my stomach etc. etc.
I was dianosed with this type of eplilepsy when I was about 22.
I am on pheytoin sodium 200mg(Epsolin,Eptoin,Dilatin) in the morning and pheytoin sodium200mg alongwith Gardenal(phenobarbetine -60mg) at bedtime.
I too had attacks if I missed my medicines(during sleep only).
During these 28 years of my taking these medicines, I have noticed that apart from taking medicines, regular and uninterrupted sleep(rest to your brain) is much necessary.
PLEASE NOTE THAT AN AFTERNOON NAP OF 45 TO 60 MINUTES IS REFRESHING AND HELPS IN KEEPING ATTACKS AT BAY. I MEAN REGULAR DAILY AFTERNOON NAPS.
Please keep on taking on your medicines and try this regime with atleast 6-7 hours sleep at night.
You may add some vitamins and calcium at intervals to you regime.
May God bless you
Raj
Hi,
I am a male and am 50 years old. I too get seizures only during sleep.
I had my first seizure when I was 21 and was wrongly diagnosed for having worms in my stomach etc. etc.
I was dianosed with this type of eplilepsy when I was about 22.
I am on pheytoin sodium 200mg(Epsolin,Eptoin,Dilatin) in the morning and pheytoin sodium200mg alongwith Gardenal(phenobarbetine -60mg) at bedtime.
I too had attacks if I missed my medicines(during sleep only).
During these 28 years of my taking these medicines, I have noticed that apart from taking medicines, regular and uninterrupted sleep(rest to your brain) is much necessary.
PLEASE NOTE THAT AN AFTERNOON NAP OF 45 TO 60 MINUTES IS REFRESHING AND HELPS IN KEEPING ATTACKS AT BAY. I MEAN REGULAR DAILY AFTERNOON NAPS.
Please keep on taking on your medicines and try this regime with atleast 6-7 hours sleep at night.
You may add some vitamins and calcium at intervals to you regime.
May God bless you
Raj